I am presently dealing with uncontrolled hypertension, sleep disorders including sleep apnea, a possible flare up of my previously diagnosed fibromyalgia, metabolic syndrome, obesity, severe stress, depression and anxiety disorders, recent development of significant tremors/shaking, periods of “fibro-fog”, periodic pain over most of my body, possible arrhythmias and/or atrial fibrillation, etc., just to name a few.
My present Mayo medical team is my primary care physician from Community Internal Medicine, Cardiologist and Sleep Center Physician(s). Based upon research that I have done I fervently believe that a Neurologist needs to be involved in, and have input to, my present diagnosis and treatment plan. I am not a doctor and I have never studied medicine. I am smart enough,however, to reach the conclusion that most of my medical problems MAY somehow arise out of disorders of the autonomic nervous system.
As I said before, I am not a doctor and I have no desire to be a doctor. That is why I need to have ALL of the appropriate medical disciplines on my team. My problems are:
(1) The earliest neurology appointment I can get with ANY neurologist is February 14, 2013. My present medical team should be finished by the end of this month.
My neurology appointment is with Dr. William Cheshire. After reading about Dr. Cheshire at various places on the Internet, and without trying or intending to be disrespectful of the other neurologists at Mayo, I really want Dr. Cheshire, and only Dr. Cheshire, as the neurologist on my medical team.
(2) When I recently had an appointment with one of my physicians about the above referenced medical issues I brought some of my research with me. I may be totally wrong in my conclusion but I got the strong impression that I offended my doctor when I tried to give him/her my research. He/she made me feel like I should stick to being just the patient. In other words I committed a major violation of some rule that patients should be seen and not heard. Now I am afraid to open my mouth for fear of offending and/or alienating my doctors. Also, my understanding is that the only reason I was getting a referral to Neurology was because of my shaking/tremors and not because of any of my other issues.
In closing, all I want to do is feel better and go back to work. Also I am only following the advice that I read at MayoClinic.com ( http://www.mayoclinic.com/health/stress-blog/MY01653).
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