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tanning01
@tanning01

Posts: 1
Joined: Mar 18, 2012

Hi My NAME IS AMY,,,, I WAS DX WITH RA, AND DERMAMYOSTITIS,

Posted by @tanning01, Mar 18, 2012

Hi My NAME IS AMY,,,, I WAS DX WITH RA, AND DERMAMYOSTITIS, 12 YEARS AGO, This new was given to me by my dr, after i had given birth to my son and he passwed away, I have been working and living in several pain for about 15 years now, It has now attacked my lung, and i am on oxygeN, breathing treatments, lot of med. But one thing that is working is ORENCIA INFUSION…. i get them 1 time MONTH, AND I GETTING STRONGER….and able to do more,,, I HAVE THREE BOYS, AND I WILL NEVER GIVE UP…. i am all so being seen pre-trans plant at clevland clinic Please what ever you are going through,,,, pray. pray and dont ever give up. Therehr so many days i feel so alone, no one care. or that dont want to b bothered,,,, JESUS HAS A UNCONDITIONAL LOVE!!!!!!!!! i will continue to praise and lift his name up all the way to the lung transplant if i must,,,,,, b strong my friend

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