My 12 yo daughter was just diagnosed with core muscular dystrophy

Posted by alka @alka, Dec 11, 2015

Hi, my 12 yo daughter was just diagnosed with core muscular dystrophy at Mayo. Is anyone out there who’s child has a similar diagnosis? It a very rare disease, and I would really like to get some support here, thank you.

Hi @alka,
Welcome to Connect. I’m Colleen, the Community Director here. I do my best to match you with another Connect member to share experiences with. @nithiyadasarath lives with muscular dystrophy and hopefully will get a notification that you have posted here and join the conversation.

What symptoms led you to seek help and ultimately get the diagnosis of core muscular dystrophy for your daughter?

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