Hi, Meredith. I'm so glad I found a resource to visit with others with Sjogren's! I'm 47 and was diagnosed with Sjogren's and Rhematoid Arthritis a year and a half ago, but of course I had dry eyes for years before being diagnosed. I had my tear ducts plugged, taking Restasis, and use Genteal severe eye ointment and Oral Balance mouth gel at night. My eye vision is poor so I have been too scared to take the plaquenil drug, as the rare side effect is blindness. Do you take this drug and have any side effects? I take vitamins and 2000 iu vit day per day. For the last 4 years I have had constipation issues and drink Dr Millers Iaso Tea which greatly helps. Do you have this issue too?
Multiple fingers on both hands have arthritis symptoms and wake me with pain but usually only after I pull weeds in my garden or in general in the winter. I have mild tingling in hands but nothing regular...yet. During winter, I keep a humidifier next to me at all times, but I sitll wake up min 3 times a night for eye drops and 5-6 times for mouth Oral Balance gel or a drink. Just recently, fatigue has been overwhelming where I can't stop thinking about taking a quick nap. And now my face has painful acne fluid-filled sores -- which is nothing like the blackhead/whitehead stuff in my earlier years. Do you or did you have this acne problem? I also noticed that I have memory issues but didn't think it was related to Sjogren's. Perhaps it is. I work full-time (at home) on a computer all day.
The memory, acne, and fatigue symptoms are all happening so fast and regular now, I think I need to see the doctor again and re-evaluate my need for plaquenil. The Advil regimen alone isn't working anymore.
How fast did your symptoms progress from 23 to 38? How are you today? What meds are you taking? So sorry you were diagnosed with this at such a young age. Were you a sickly child?
My parents both chain smoked and I had tonsilitis/strep continually. I don't drink or smoke. I had bronchial and sinus infections alot in my 30's and 40's. I've had the flu twice where I was hospitalized; since taking the flu shot, I haven't gotten this anymore. I also had viral meningitis when I was 29; I think that is what spurred my decline in health. I'm really hoping for NO NEW SYMPTOMS. UGH@~! @meredith0903