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tselentis
@tselentis

Posts: 1
Joined: Oct 26, 2011

Hi Lisa, I read your story and I can completely understand

Posted by @tselentis, Oct 26, 2011

Hi Lisa,

I read your story and I can completely understand where you are coming from. I currently suffer from motility issues ( pseudobstruction), but I am on the fast path to gastroparesis. I have been suffering with these symptoms for the last 3 years and they all stem from my lupus/mixed connective tissue disease, which I have had for 20 years. I am trying so hard to “be my own advocate,” but all the doctors I have seen are useless. I am down to 108 lbs and I have not been this small since I was 11 years old, yet my (male) doctors keep insisting that I am a normal BMI and that I should “consider myself lucky”. I am in search of a new gastroenterologist and was considering going to Mayo, but based on your experience I am not so sure now. Is that where you were treated? I am currently seeing docs in Chicago, where I am from. All I want is to prevent this from getting any worse. @lisab

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