Share this:
alansuher

Hi George - my major problems are different (POEMS Syndrome plus a

Posted by @alansuher in Just Want to Talk, Oct 30, 2012

Hi George - my major problems are different (POEMS Syndrome plus a bunch of other things. See my website for details: http://poemssyndrome.info/ I have been to thte Mayo Clinic three times becasue there is an expert there that specializes in POEMS. Nearly a year ago I did have a heart problem and ended up with open heart surgery. I had a double by-pass, two values repaired and a pacemaker. All is well now but , wow was it a tough surgery. I never expected a heart problem because I have normal blood pressure, low cholesterol, not over weight (maybe under weight), not a high stress life,I don't drink and I don't even swear that much! But I did have a problem and all seems well with that issue now. If you are being treated at the Mayo, you are at the best place and hopefully they will solve your problem. There isn't much that they can't solve. How did you locate me? Anything else I can answer, I would be glad to.
Alan Suher @georgejohnson807

georgejohnson807

Posted by @georgejohnson807, Oct 30, 2012

I am new to mayoclinic discussion groups. Thanks for the advice!

georgejohnson807

Posted by @georgejohnson807, Oct 30, 2012

I found you through the members list. I am looking for some advice and seeing what direction I should take. I truly appreciate your advice.

djohnmccarthy

Posted by @djohnmccarthy, Mar 8, 2015

Alan lost his battle to POEMS Syndrome Saturday March 7, 2015 at 5 AM after 17 years. He was a real help and inspiration to other POEMS Syndrome patients and I know he be missed by them as well as his family and friends.

Please login or become a member to post a comment.