Hi dd, I have had this for a very long time and I have found the most important thing for me is to control my depression which goes hand in hand with this hardship. I recently started seeing a therapist at the county who understands this illness and it really helps me. Also I got my meds changed and added a small amount of abilify to my other antidepressant. I am depressed because I cant do things and I need to and want to and this gets to me day after day. I take one hour at a time or one day at a time. God bless you and your family and hang in there. Some people do get better.