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hepatitis C

Posted by @sapphire in Just Want to Talk, Mar 2, 2012

I am in end stage liver disease. wonering if there is anyone out there who shares this health issue.

Tags: hepatitis C


Posted by @sapphire, Mar 2, 2012

oh well


Posted by @saundrella, Mar 11, 2012

Yes, I have compensated cirrhosis with 4 medium-sized varices and splenamegaly / low platelets. I have autoimmune primary biliary cirrhosis and take URSO. As best I can figure, I have about 5-7 years, left. We can talk privately via email, if you like.


Posted by @sapphire, Mar 12, 2012

yes let's do that. My MELD is 22. email is put a subject in so I know it is you. Looking forward to chatting with you.


Posted by @saundrella, Mar 12, 2012

I sent you an email already. I think it had Mayo Discussion Group in the subject area. Let me know if you got it.

Thanks, Saundrella


Posted by @karen51, Mar 18, 2012

In 2011 my liver reach the end of it's end stage. Diagnosed in 1997 I just pushed on forward until I had to have a transplant. Before my transplant I had several varice bandings and two major bleeds. your MELD score will keeping going up could be fast, could be slow. It took 15 years for mine to get to 20, but then zoom. I never reached the top score,but my liver was in bad shape. Mayo is the best place to go. When my liver is stable for a while I will begin treatment again. Previous two long treatments of ribovarin and interferon did not cure me. Better drugs now!

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