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Posts: 1
Joined: Dec 06, 2011

Help for Clayton

Posted by @helpforclayton, Dec 6, 2011

I am writing in regards to my five year old grandson, Clayton, hoping someone may recognize his symptoms, be able to diagnose his condition, and hopefully provide a treatment plan for him since he’s seldom gone more than 2 weeks at a time in his entire life without being sick. My daughter is a single mom and receives Medicaid, which I think may be limiting the quality of care Clayton has received from physicians over the years.

I’m sure he either has an immune deficiency or some other rare condition which makes him so suscepitable to illnesses most children rarely ever receive. I have listed some of the highlights regarding the illnesses through his life below. When reading, please keep in mind, this is a child that does not attend daycare, preschool, play groups, or even regularly visits places with a large amounts of people. He usually only has contact with close relatives.

If you are someone who knows of a child with similar conditions, or a physician who may have an idea what may be wrong with Clayton, please feel free to contact me to let me know what steps I should take in order to try to get him the treatment he deserves.

Thank you very much for reading,

• Seizures – Since birth, but are getting stronger and more frequent
• Jaundice at birth
• Low Blood Sugar – First week of life. Had to stay in Special Care Nursery while in the hospital.
• Was blind until 4 months old
• Projectile Vomiting and Acid Reflux 2006 and 2007 – was tested for Pyloric Stenosis
• Ear infection – 2007 & 2010
• Scarlett Fever – 2008
• Strep Throat – 2008 & 2010
• Whooping Cough – 2009
• Croup – 2009 & 2010
• H1N1 – 2009
• Ring Worm – 2009, 2010 & 2011
• Low iron – Borderline Anemia – Determined 2010
• Meningitis – 2010
• Pink Eye – Twice in 2010
• Pneumonia – 2011
• Eczema – Began in 2011
• Bronchitis – Numerous times
• Numerous viral and bacterial infections his entire life
• Even with just a common cold, fevers normally reach 103 or higher
• He has a high level of acidity in his snot – It eats away at his face even after just 10 or 15 minutes of being sick. Makes his face bleed and crack.
• He has a trigger thumb that restricts him from making the knuckles in his thumb to go straight. Had a cast – did not help.
• His left side rib cage is inverted
• Possible Dyslexia


Jill Himli

Posts: 6
Joined: May 20, 2013
Posted by @jillhimli, May 28, 2013

It’s a shame that Clayton’s quality of care is affected by your daughter’s financial situation. Might I suggest you talk to a social worker in your county to see if he qualifies for some aid, possibly social security due to his seizures. If his current doctor isn’t helping you find a diagnosis then, if it were me, I’d look for a new doctor.

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