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Chan Fernando
@ceejay

Posts: 2
Joined: Jun 30, 2014

Writing from far off Sri Lanka... Diagnosed with Livedoid Vasculopathy

Posted by @ceejay, Jun 30, 2014

Hello , I am writing from far off Sri Lanka.I am a Medical Doctor by profession. I ve been diagnosed with
Livedoid Vasculopathy since about 3 years ago – have had remissions on about 4 occasions.No specific therapy has answered, but in very initial stages of “eruptions “,a compressive such as firm-fitting socks seem to slow down or stop progression.However, on a few occasions,has gone the full course with neuropathic ,almost unbearable pain with ulceration. Dressed ulcers with BIATAIN COLOPLAST and TRAMADOL 50 mg for pain.I felt that mild / moderate exercise ie walking, helped accelerate healing — of course it did recur a few months later.We ve no warm / cold seasons here; therefore not seasonal.Cant pin-point any triggering factors. Longest spell I ve had free of signs and symptoms is about 6 months. Presently , having an ” attack ‘, and just commenced BROWN APPLE CIDER VINEGAR 20 mls twice daily — too early to analyse any benefit. Mine is virtually a Text Book case in symptomotology and appearances. My Dermatologist diagnosed LV at very first consultation

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Posted by @Margaret_Marie, Jul 2, 2014

Thanks for your post, @ceejay.


Martin, Volunteer Mentor
@mlemieux

Posts: 73
Joined: Aug 15, 2014
Posted by @mlemieux, Feb 2, 2016

Hi @ceejay thanks for sharing that information. I can relate to your story 100% as I too suffer from the same.

We have a couple of discussions that might interest you concerning LV:

1) https://connect.mayoclinic.org/discussion/i-am-looking-for-outcomes-in-the-use-of-blood-thinners-in/

2) https://connect.mayoclinic.org/discussion/livedoid-vasculopathy/

I hope this helps!

Please feel free to “FOLLOW ME” as well. I’m trying to help those with LV as much as possible.
Click on my profile name > (Under “Contact Me”), look for “Yes, I’ll follow mlemieux

Sincerely,
Martin Lemieux
@Martin_Lemieux ~tweet

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