Headaches 13 years

Posted by csfleaker @csfleaker, Oct 29 8:55pm

Suffering from daily headaches for 13 years. Neurologist diagnosed as csf leak headaches right from the beginning. Countless mri,s of brain and spine plus mylegrams, lateral Decibuis mylegrams left and right of complete spine at Stanford could find no leaks. Had about a dozen blood patches with and without fibrin glue over the years with no help. Stanford specialist said they don’t use digital subtraction myelograms that it plain myelograms were the gold standard, I disagreed and decided to end further treatment and diagnosis as I i am getting no help. Constant daily headaches continue unless I lay flat for a while.

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