Have most folks been checked for hyper parathyroid issues?

Posted by cl58 @cl58, Sep 16 5:52pm

I just got my first DXA - spine -1.1 but wrist -3.5. Last 5 panels show blood calcium above 10. My primary shrugged off questions about PTH check. Has anyone pushed to have the possibility of hyperparathyrodism checked?

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Are you taking calcium supplements? Your above 10 score.
I had the parathyroid checked. Was ok. I have hypercalciuria which causes a person to pee out alot more calcium than the average person. It's heritary I was told. One big factor in causing osteoporosis. Have it checked to rule it out.
I had the Reclast infusion almost a year ago. For me, did very little. If your dr won't run the tests, please see someone else. It's YOUR body, not theirs.

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My Endocrinologist ordered it with labs, I think she's wanting me to take Prolia after my DEXA. When reading about Prolia I saw that it can be a problem if the patient has Hypoparathyroidism. I'm guessing she might be proactive with checking this.

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Profile picture for poodlemother1 @poodlemother1

Are you taking calcium supplements? Your above 10 score.
I had the parathyroid checked. Was ok. I have hypercalciuria which causes a person to pee out alot more calcium than the average person. It's heritary I was told. One big factor in causing osteoporosis. Have it checked to rule it out.
I had the Reclast infusion almost a year ago. For me, did very little. If your dr won't run the tests, please see someone else. It's YOUR body, not theirs.

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@poodlemother1
Thanks - I’ll see about getting that checked. I am not taking any supplements- I was going to start until I read about the hyperparathyroidism and decided to wait until I know one way or another.

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Profile picture for pat9892 @pat9892

My Endocrinologist ordered it with labs, I think she's wanting me to take Prolia after my DEXA. When reading about Prolia I saw that it can be a problem if the patient has Hypoparathyroidism. I'm guessing she might be proactive with checking this.

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@pat9892
I think I will ask for a consultation with an endocrinologist if she stays reluctant to order the test.

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c158, I'd ask for a serum pth. Pth fluctuates throughout the day. Baseline is usually around 8am and I'd have the draw at that time.
You might want to listen to https://www.youtube.com/watch I like this presenter because he speaks quickly and holds some of the same opinion that I do, but you have to question everything you hear from anyone. And I as I always caution with Dr. Lucas because he is a good salesman, don't buy anything.
Is your doctor (endocrinologist?) recommending medication?
The endocrinologist I see didn't make me ask for pth, he orders them for all of his osteoporosis patients. I think you should have the pth test it is causing low wrist mineral content or not, so that you don't risk more bone loss.

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My doctor tested my PTH before prescribing Tymlos. Tymlos can raise PTH, so if I had shown an excessive level before even starting meds, he would have prescribed something else. He also monitored PTH during my treatment.

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I have had my PTH tested 3 times over the years, normal every time. My calcium levels have always been between 9 and 10, but PTH normal.

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Profile picture for poodlemother1 @poodlemother1

Are you taking calcium supplements? Your above 10 score.
I had the parathyroid checked. Was ok. I have hypercalciuria which causes a person to pee out alot more calcium than the average person. It's heritary I was told. One big factor in causing osteoporosis. Have it checked to rule it out.
I had the Reclast infusion almost a year ago. For me, did very little. If your dr won't run the tests, please see someone else. It's YOUR body, not theirs.

Jump to this post

Hi @poodlemother1

I, too, was diagnosed with hypercalciuria about 8 months ago.

After OP treatment for about 15 years, my new doc ordered a 24-hour pee test. My numbers were in the stratosphere, so high in fact, that my doc couldn’t believe I had never experienced kidney stones. I had the same pee test with equally high results c. 2017 but my doc, at that time, never mentioned it. ???

Bottom line, my current doc prescribed chlorthalidone to correct the hypercalciuria. My fingers are crossed for the future. I’m not expecting any miracle, but preventing future stones while helping my bones is a plus.
I also drink at least 54 ounces of water every day.

It’s worth mentioning that I’ve had regular calcium and PTH labs and except for one little elevation in calcium, always normal.

Thanks for posting!! Cheers!

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I think my endocrinologist must be pretty good and thorough because, during my first visit with her for osteoporosis, she ordered the thyroid tests in addition to the bone scan, as well as the test for celiac disease, the reason being that can cause a problem where your intestinal system is not able to absorb calcium and vitamin D. When the tests came back it it showed normal levels of thyroid and celiac, so osteoporosis is the official diagnosis. She prescribed an anabolic, Teriparatide, due to the fact that I will need a tooth extracted in the near future. A biophosphonate drug like Reclast or Evenity right now could interfere with that. She said she will prescribe Relcast in two years once the tooth problem is gone.

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erinz, saved by the tooth. Teriparatide is the best and maybe by the two year endpoint, teriparatide will be commonly prescribed for additional years.

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