Has anyone tried Fascial supplements?

Posted by 2mary @2mary, Sep 12 11:52am

Has anyone tried TrueForm Fascial release supplements and if so was it helpful? I was diagnosed in February and have been on prednisone starting at 40 mg now at 3 mg. I have never been without pain and now my left leg and hip are so painful I have trouble walking. I won’t see a rheumatologist until October 8 and want to try anything. Thank you

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So sorry to hear you've never gotten out of pain. That seems unusual that your Prednisone dose has been reduced so much but your pain (and any other symptoms?) Haven't ever been completely resolved. I'm a newbie myself, just diagnosed 7/31 and had to go up twice to get all my pain/symptoms under control (from 15mg, to 20, to 25mg). Then after 2 weeks at 25mg, my Rheumatologist said to taper to 22.5mg.
Suggestion, call the Rheumatologist office and see if you can get on cancellation list. It worked for me. I called, explained my blood test results, probable PMR, symptoms and they called me next day and got me in the next day after that. Had Prednisone that evening. Ultrasound next day to verify PMR in shoulders and check for GCA (Giant Cell Arterits), which is even more serious. You may already know that, but just in case you don't. My appointment was still at least 3 weeks away. Whatever Dr. is treating you since February may be concerned about getting you off of Prednisone, but if your pain has never been controlled and you're still in pain, I really hope you can get in with a Rheumatologist sooner.
Blessings.

ust a thought.

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Thank you, I am on a waiting list. I should clarify my pain is not as bad in shoulders as in the beginning I just have never been pain free. I believe I have been on prednisone so long and have been up and down many times. I wanted to be off prednisone before I meet the rheumatologist. So I went from 5mg to 3mg 3 weeks ago. Think I should go back to 5mg until I meet the rheumatologist. Thank you

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