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Has anyone taken more than 4.5mg of LDN?
I had been taking LDN for 3-4 months at 4.5 mg. I was still having pain mostly all day every day. Couldn’t get on doctor website to refill so stopped it for about 1 1/2 weeks. Then got it again, asked doctor if it was possible to take 6mg. She said I could try it and if tolerated should would change my dose to 6mg. So I’m taking 4.5 pill and a half. Yesterday was a good day in regards to pain. Does anyone know if it’s okay to take more than 4.5mg?
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@coloradom My Neurologist won’t rx low-dose naltrexone. Is it worth changing doctors to try it?
@ellenblythe I thik it's worth finding a doctor who'll prescribe it. I wouldn't necessarily stop seeing the neurologist. Healing seems to take an entire team of docs at this point.
@ellenblythe Yes, I would find a Dr who would prescribe LDN. It helped me tremendously with my fibromyalgia and insomnia. I went to a pain clinic for the prescription but have since learned that my PCP will also prescribe it. I am surprised your neurologist won't prescribe it, as there are many studies showing it's safe and effective.
Did he give you a reason why he won't prescribe it?
@daisy17 He is totally against all opioid- barbiturate type meds. My PCP does rx my Butalbutol and he only givrs that to 1 patient. Hes good about trying all the triptans- they just don’t work for my migraine pain. Ubrelvy (sp?) wkd for some time, now i’ve switched to Emgality. He also rxs my Nortriptyline and Topiramate for nerve- related pain. Anyway, I grilled him on it and I guess he had a patient OD on either LDN or something else, and he got burned. So, I sort of get it bit I have to get my Lisdex and 1 or 2 others from my Psyche, some from my PCP, I don’t teally want to go back to a pain dr just for 1 rx. After 35 years, I believe in trying every!
@coloradom If not healing, coping. Thanks!
@ellenblythe my health insurance (Kaiser in Ca) won’t prescribe it either. I found a doctor on line who does just that and a compound pharmacy in another state that formulates it. Needless to say I have to pay out of pocket. Doctor charges minimal for 10 minute appointment just to prescribe it and check on how I’m doing. I’m feeling better than I have in a long time at 6mg. What makes it worth it to me too is that it has less side effects. Especially after the nightmare experience I had with withdrawals from Cymbalta and it was making me more fatigued and I thought it was the fibromyalgia, wouldn’t get out of bed until 1-5pm. Now I get out of bed before 9am! I’m only on the LDN now, heating pad, ibuprofen, biofreeze, if needed. Also got off the Gabapentin. I decided to get off these because of problems with my memory, weight gain, tiredness. My mom passed away from dementia last year. Seeing what she went through made me pay attention to how these medications affected my memory/dementia risk.
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1 Reaction@ellenbly That's a poor excuse. Just because one patient overdosed on Naltrexone is no reason to refuse it to other patients. With that logic, I guess he could deny any meds to anyone.. LDN is 'low-dose" Naltrexone, usually 3-8mg. Regular dose for opioid use disorder at 25-50 mg a day and for alcohol use disorder, the recommended dose is 50 mg per day.
I understand it's frustrating to spend the time and money to see a new doctor. But your initial appointment may be enough to get the prescription, and it's worth it in my opinion.
How long before people have noticed it helping? I started at 3mg and am up to 4.5. It is causing insomnia and crazy dreams, so I am switching to take it in the morning. Been on for 2 months and have not noticed any change in body pain, energy, or mood. I was so hopeful about it helping.
I was taking it about 3 1/2 months and had not noticed any change. Asked doctor to up the dose. Now I’m taking 6mg and I feel better than I have in a long time. Less pain. Better mood. More energy!