Has anyone done a doctor ordered gluten challenge?
Good morning. A little back story first. I was diagnosed with Crohn's and Celiac on the same day 5 years ago. I had had all of the diarrhea, wt loss symptoms for about a year. I admit it took me almost a year to come to grips with being totally gluten free, but I did it. I also quit smoking at the same time. 3 years ago today actually, I was hospitalized with extremely elevated liver enzymes, right side pain (which I still have). Biopsy's of my liver revealed some kind of hepatitis which they at first thought was due to the Remicade I was on for the Crohn's. I was transferred per ambulance to the Mayo Clinic in Rochester, MN because I was in liver failure and it looked as though I was going to need a transplant. It was determined that I had Autoimmune Hepatitis and slowly got better, but I am still on anti-rejection meds and prednisone. I was also diagnosed with Fibromyalgia. Any way, long story longer, here I am. Most days I feel like crap and never really know what is causing it. I feel that I have done a pretty good job of being gluten free, but we do have regular bread and such in our home. Twice in the last year my awesome doctors at Mayo have asked me if I'm sure I have Celiac because my endoscopies look too good. Since I have been gf for so long my Dr. is having me do a gluten challenge, where I eat 2-10 grams of gluten per day for 6 weeks at which time I will have blood work and an endoscopy. I've been eating gluten for over a week now (which is kind of fun, but also feels wrong) and the only difference I can tell is that I am constipated, which I have had problems with off and on. I feel more bloated, obviously, and feel even more exhausted than usual, plus a nagging headache.
I apologize for the long story. Has anyone had to do a gluten challenge, and what has been your experience?