1. < Hypertrophic Cardiomyopathy (HCM)
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Had ablation?

Posted by hopenr @hopenr, Nov 10 7:56am

I would like to know how many people on this site have had septal ablations without pacemakers, and how successful was or wasn't it? Thank you!

Interested in more discussions like this? Go to the Hypertrophic Cardiomyopathy (HCM) Support Group.

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jachrist | @jachrist | Nov 10 8:32am

I had an alcohol septal ablation. No doubt it was a must. I had a sudden cardiac arrest and I needed the ablation or I would die again. I had an ICD after the ablation. The ablation surgery was not comfortable, but it was needed.
Have it done!

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hopenr | @hopenr | Nov 10 9:09am
In reply to @jachrist "I had an alcohol septal ablation. No doubt it was a must. I had a sudden..." + (show)
Profile picture for jachrist @jachrist

I had an alcohol septal ablation. No doubt it was a must. I had a sudden cardiac arrest and I needed the ablation or I would die again. I had an ICD after the ablation. The ablation surgery was not comfortable, but it was needed.
Have it done!

Jump to this post

@jachrist I have HoCm and my doctors (COE) say I do not need it but that this disease is progressive so I might in the future. I am trying to get a feel for how often a pacemaker is needed and is this procedure mostly successful. I have heard mixed reviews.

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jachrist | @jachrist | Nov 10 10:12am

Everyone is different. It depends on whether you may need a loop recorder, pacemaker, or an ICD (defibrillator)
I would follow your Cardiologist recommendations. You are connected to Mayo and they will monitor if the device activated.
I personally have not heard of issues, but I'm sure it's possible.

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walkinggirl | @walkinggirl | Nov 11 8:40am

We are all different. Both Mayo and my home cardiologist did not recommend ablation because of where my thickening was located, specially around the mitral valve area. I had a septal myectomy on the advice of both.

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hopenr | @hopenr | Nov 11 9:30am

my regular cardio and my coe cardio tell me open heart is unnecessary in my condition, so the next step, if any, is an ablation.

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johnwx | @johnwx | Nov 11 12:32pm

See my notes on my experience with septal ablation at
https://connect.mayoclinic.org/discussion/septal-ablation-1/
I am still adding information as I just had it done last Thursday.

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lgusan | @lgusan | Nov 12 3:07pm

I have had 2 ablation procedures and unfortunately after 2 months of being free from AFIB on both ablations, my AFIB returned.

My Cardiologist wanted to proceed with another ablation procedure, but I declined and told him I was tired of so many procedures, 3 cauterizations, 2 cardioversions, 2 ablations and 1 Cardio catheterization and none of these procedures have helped me any.

I am 80 years old, and I have congestive heart failure, pulmonary hypertension, pooling of blood in veins, coronary disease and the list goes on with all my health issues, not only my heart.

Therefore, I just want to live my life, for whatever time I have left, one day at a time. I don't want to go through anymore procedures.

Take care and God Bless.

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