Grover's Disease: What works to help find relief?

Posted by 43219876x @43219876x, Sep 23, 2016

I have been diagnosed with Grover's disease under my breasts. I had a biopsy for diagnosis. Tried topical ointment with no really good results. Any ideas?

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@babbs

I am going to report my GD as a possible adverse reaction to the shingles shot. I would encourage anyone who feels they have had a similar experience to do the same. Because I'm new on this group, they won't let me post the link, but you can Google reporting adverse reaction to vaccination and you will find the government website. They will want the dates of the vaccine and dates of outbreaks of shingles or other symptoms. I'm also going to tell my MD.

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Hi @babbs, welcome to Mayo Clinic Connect. I noticed that you wished to post a URL to a web resource with your post. You will be able to add URLs to your posts in a few days. There is a brief period where new members can't post links. We do this to deter spammers and keep the community safe. Clearly the link you wanted to post is not spam. Please allow me to post it for you.

Vaccine Adverse Event Reporting System (VAERS) https://vaers.hhs.gov/reportevent.html

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@nodgabnoj

I have posted on this site several times about my situation, but I will give you a synopsis of my experiences with GD. I am 99% sure it was the shingles shots I got last summer and fall, that prompted my disease. I have a very healthy immune system, and virtually no shot of any kind had any kind of negative effects, swelling, pain, tiredness, etc., in the past. After my first shot, my ears started to itch, after my second, the itching spread and got worse and worse. I waited just two months and two weeks to get the second shot. Possibly, if I had waited longer I might have avoided this. So far I have tried just about EVERYTHING, including over two months of cilantro smoothies, with very little effect. Ironically, Motrin is the most effective itch stopper for me. I don't like taking it due to its negative effect on the kidneys. I never take more than four a day, two early in the day, and two before I go to sleep. I took the Motrin for an elbow problem and realized that, surprisingly, my itching subsided. I have also taken one week of oral steroids which helped. I've been told that one week is not long enough, that two weeks is far more effective, so I am going back to my physician to hopefully get another round. Similar to you, my clothing also can prompt itching. I bought a long sleeve t-shirt at Uniglo a year or two ago that might suit your needs. They also sell the long legged tights. Very light and smooth. I am furious at the Shingrix, the manufacturers of the vaccine, for not warning people about the possible negative side effects of the shots. I have already called the hotline and made my feelings known. I am going to send them an e-mail soon, as I think it's important that we go on the record about this. I really don't have any expectations about a result, but feel it's important, nonetheless. Thanks for sharing your thoughts.

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Like you blame Shingrix for triggering GD or giving me over a month of Shingles, located on torso and looked very similar to past GD outbreaks except bumps were clustered in plaque like blotches. Recently talked to a friend whose boyfriend (an MD, an Internist) also got Shingles after getting the Shingrix shot.

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@babbs

I also have a healthy immune system – waited 6 months between shots, so probably that did not affect. I don't think anyone is aware of this as a possible side effect of the vaccination. Certainly dermatologists don't seem to be aware. The case of shingles I got after the last shot was pretty mild. Had never had shingles before. GD started almost immediately afterwards. But I had had itching between my shoulder blades for several years – worse at night, but never a rash. My husband was slathering cream on my back every night because I thought itching was caused by dry skin. Then after shingles resolved, my husband started seeing the rash which then covered my entire torso, front and back, wherever there had been previous sun damage. How these are all linked is an interesting mystery.

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babbs- my derm told me that what I thought was a GD recurrence was probably 100% related to the Shingrix vaccine I got earlier in the week/

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Well it’s important to report to CDC as possible related reaction. One report won’t trigger an investigation, but many reports will.

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@gardeningjunkie

babbs- my derm told me that what I thought was a GD recurrence was probably 100% related to the Shingrix vaccine I got earlier in the week/

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No surprise here.

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@babbs

I am going to report my GD as a possible adverse reaction to the shingles shot. I would encourage anyone who feels they have had a similar experience to do the same. Because I'm new on this group, they won't let me post the link, but you can Google reporting adverse reaction to vaccination and you will find the government website. They will want the dates of the vaccine and dates of outbreaks of shingles or other symptoms. I'm also going to tell my MD.

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Me too. These companies must be held accountable.

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@nodgabnoj

Me too. These companies must be held accountable.

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In addition, your doctor should report it. CDC website encourages both patients and doctor to report. I had a 5 month time lag between last shot and shingles onset, but GD right on the heels of shingles. They don’t know unless we tell them.

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I have no bumps, I have been test to Celiac disease and it was negative. Been on all allergy meds, Zantac (H2 inhibitor), test for PV negative, tested for metals (negative), allergy tested skin and blood (no allergies), I shake on the inside, under my breast "sweats" and has a funny odor. Tried gluten free, dermatologist soaps and lotions, free on all soaps and washing liquid, CT scans, lung XRays, blood work with an oncologist all negative. DO I have the symptoms of Grover's? I don't fit the symptoms for this do I? I need help! Who test for Grovers?

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@determinedwoman

I have no bumps, I have been test to Celiac disease and it was negative. Been on all allergy meds, Zantac (H2 inhibitor), test for PV negative, tested for metals (negative), allergy tested skin and blood (no allergies), I shake on the inside, under my breast "sweats" and has a funny odor. Tried gluten free, dermatologist soaps and lotions, free on all soaps and washing liquid, CT scans, lung XRays, blood work with an oncologist all negative. DO I have the symptoms of Grover's? I don't fit the symptoms for this do I? I need help! Who test for Grovers?

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I have the shakes inside, crawling, biting, tingling skin, no appetite, can's sleep the night before the symptom of my skin start. I get the hiccups, under my breast "sweat" and have a funny odor. I have been to 2 oncologist, neurologist (who did nothing but talk about taking my meds), dermatologist and allergist as well as my PCP and NO ONE has a clue. My life is a miserable state. Cry at night until I wear myself out (I am 50) not in menopause saw my ObGYN. HELP! PLEASE

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@determinedwoman

I have no bumps, I have been test to Celiac disease and it was negative. Been on all allergy meds, Zantac (H2 inhibitor), test for PV negative, tested for metals (negative), allergy tested skin and blood (no allergies), I shake on the inside, under my breast "sweats" and has a funny odor. Tried gluten free, dermatologist soaps and lotions, free on all soaps and washing liquid, CT scans, lung XRays, blood work with an oncologist all negative. DO I have the symptoms of Grover's? I don't fit the symptoms for this do I? I need help! Who test for Grovers?

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Diagnosis of Grover's is through a biopsy . If you itch like crazy and have red bumps…possibly Grover's. If just itchy and no red bumps…likely something else

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@kimass1

Diagnosis of Grover's is through a biopsy . If you itch like crazy and have red bumps…possibly Grover's. If just itchy and no red bumps…likely something else

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I agree. You need 1 or 2 biopsies from two different dermatologists to do grovers.

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@kimass1

Diagnosis of Grover's is through a biopsy . If you itch like crazy and have red bumps…possibly Grover's. If just itchy and no red bumps…likely something else

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Nice picture – looks just like me😳

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