Good News

Posted by thumperguy @thumperguy, Sep 27 6:03pm

Pulmonologist reports recent CT scan is unchanged from a year ago. No progression. Don

Yes! This is what I love to hear! 7% saline neb and airway clearance seems to be the way to maintain.
Sue

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yipeee fantastic Don.

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I finally have good news! After being on the Big 3 for 2 years I am off of all my medications! It's been 1 year since my first negative spudem test and my CT came back good! I still cough occasionally but this feels good! I will keep up with my 7% saline religiously!

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So happy for you!

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@tinaesims

I finally have good news! After being on the Big 3 for 2 years I am off of all my medications! It's been 1 year since my first negative spudem test and my CT came back good! I still cough occasionally but this feels good! I will keep up with my 7% saline religiously!

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Yeah Tina, it is indeed a good feeling to realize we’re not entirely at the mercy of “outrageous fortune.” Don

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@tinaesims

I finally have good news! After being on the Big 3 for 2 years I am off of all my medications! It's been 1 year since my first negative spudem test and my CT came back good! I still cough occasionally but this feels good! I will keep up with my 7% saline religiously!

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I am truly happy with this great news. It means a lot to all of us who seek our healing. It's music to our ears and hope to our hearts.

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@saaa

I am truly happy with this great news. It means a lot to all of us who seek our healing. It's music to our ears and hope to our hearts.

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“music to our ears and hope to our hearts.”

Nice turn of a phrase Saaa!

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@tinaesims

I finally have good news! After being on the Big 3 for 2 years I am off of all my medications! It's been 1 year since my first negative spudem test and my CT came back good! I still cough occasionally but this feels good! I will keep up with my 7% saline religiously!

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Wonderful news!!

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@tinaesims

I finally have good news! After being on the Big 3 for 2 years I am off of all my medications! It's been 1 year since my first negative spudem test and my CT came back good! I still cough occasionally but this feels good! I will keep up with my 7% saline religiously!

Jump to this post

I am so excited for you! Thank you so much for sharing your good news! I have been on the big three plus Amikacin for 6 months with no significant change. I now have hope, seeing that it took you a year before achieving the first negative sample. Continued blessings!

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I just had my appt. with my pulmonologist and a CT scan. He showed me the area of bronchiectasis and said it is stable from last year. I use a percussion vest and nebulizer with 7% saline {thanks to this group}. However he wants me to obtain a "Volara" {sp?} nebulizer to use. Does anyone use this? The therapist who is to bring it described it in a way that said the percussion vest works on the outside and this works on the inside. The co-payment is $1200.00. Will pay what is needed for my health but just curious if it makes that much difference and if anyone else uses one. Thanks guys! Love this group.

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Probably a time to apply a bit of “caveat emptor” before signing the dotted line. Don

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