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robertjr
@robertjr

Posts: 69
Joined: Jul 14, 2017

Getting confused again. Epilepsy and lung issues

Posted by @robertjr, Sep 28, 2017

Started taking meds for grand mals when i was around 6 ,couple times had to change meds ,guess i nust started to reject it not positive,lot of my seizure history gone.For last 30 plus on dilantin ,phenytoin,basically same.lots of sides and when i had a grand mal took 3,4 days to get kinda ok.Now dilantin keeps going into toxic level.Neurologist took me off put on keppra ,3 level changes and 6 grand mals in 1.5 month now on vimpat.Feel like starting over,Thing is im in 60s nowand between my grand mals and i ihave severe COPD, 4 times in hospital on ventilator my doctors dont seem too sure what advice to give me ,guess copd and epilepsy in 60 year olds not common,right now live in Deleware,on disability,at least my wife doesdriving,cant really go to mayo ,plus in 2014 had lung cancer,in remission,but was going for lung transplant and that was scratched.Dont know if anything can be done now ,every seizure seems to make my !ung even worse.

REPLY

Hi @robertjr, Is Vimpat (lacosamide) working better for you than Keppra did?

You may wish to also follow the Lung Health group here on Connect. https://connect.mayoclinic.org/group/lung-conditions/

@colleenyoung

Hi @robertjr, Is Vimpat (lacosamide) working better for you than Keppra did?

You may wish to also follow the Lung Health group here on Connect. https://connect.mayoclinic.org/group/lung-conditions/

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Colleen ,Doctor has me still taking Kappra 3000 per day ,1500 2x per day ,and 100 vimpat 2x per day,its 2 weeks no grand mals ,knock on wood.might be taking couple different types from now on.See doctor two weeks from now.Went on lung health group ,like it.Thanks for asking.

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