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Posts: 3
Joined: Nov 20, 2011

generalized dystonia

Posted by @mabra, Nov 20, 2011

my dystonia has no started to affect the brain. I have been feeling so overwhelmed and lonely not knowing what to do. I would love some advice.


Alex Simon

Posts: 179
Joined: Feb 08, 2011
Posted by @alexsimon, Dec 30, 2011

Hello Mabra-
I am unsure if you are aware of this but Mayo Clinic has some information available online at:

If you would like to request an appointment to see a Mayo physician at one of our 3 sites, please click in the “Request an Appointment” link in the upper right hand corner.


Posts: 2
Joined: Mar 26, 2012
Posted by @twirlgirl101, Mar 26, 2012

Hi Mabra! I am 16 years old and was diagnosed with a fixed truncal dystonia a year ago. I understand how it is to feel alone. If you ever need to talk to someone I’m here for you!

Liked by twirlgirl101

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