Gastroparesis with severe symptoms!
Does anyone have gastroparesis (low stomach emptying) and what are you doing to manage the problem. I was finally diagnoised with this condition this year after at least 3plus years of unexplained illness. Most of my symtoms were related to pain in the chest; deep back shoulder pain; lightheaded/dizzyness; I always felt like I was having a heart attack. But each time I went to the ER all the heart test came back fine and was told it was just acid reflux. I have been to cardiology; neuralogy; gastrology. I have had heart test; stress test;;thryrod; diabectic test; all kinds of blood test (only showed low vit D) MRI of brain; spinal tap. Finally had stomach emptying test in March – which showed 85% food still in stomach after 3 hours. I have had to switch to a no fat; low fiber diet – pretty much all liquid; soft (babyfood like) foods. If I do experiment and eat something that doesn’t move through – then I end up with the deep shoulder pain; lighthed/dizziness;; numbness in the arms/fingers and over all wekness. In order to overcome this feeling – It seems to work by drinking just water /gator aid for at least a day. I just don’t know if this all started by a nerve damage issue or if it is reverserble. I have done a lot of internet reading and there doesn’t seem to be anything to do except eating habit changes. And no one else seems to associate the pain I have with the stomach – I never seem to have stomach pain – Only fullness; nausea; bloating/gas. I also am not diabetic. Which my understanding is a reason for this condition. If you have this condition – what are your symtoms and how are you managing? Thanks
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Yes I am 52 years old and had to leave work a year ago. I have mild gastroparesis with severe unrelenting nausea and pain. I just started Marinol, but my gastroenterologist hadn’t really used the drug , but wrote 2.5 mg twice a day. Not enough. 5mg gets rid of nausea, but I still have this unwell feeling in my stomach. I have had a hiatal hernia with reflux since I was 22, but I’ve done well with PPi. I started developing nausea around 2007 plus I was developing lower extremity neuropathy. Zofran worked good for several years, but no longer effective . The first of December I went into a severe nauseated state that doesn’t let up. I do NOT vomit. I can’t live like this . I was to afraid of Reglan
I have gastroparesis too and sometimes I use an oil by Doterra called Stomach ease and it works great for nausea. I get it online or at a health food store. Just a thought, Robin
I take ondansetron odt it helps with nausea.
I have hiatal hernia and reflux; what is PPI?
Protein pump inhibitor. (PRILOSEC, PROTONIX, NEXIUM, ETC.)
Hello @ohimsick and @xcinsanx
I’d like to welcome you to Connect, and thank you both for joining the Digestive Health group with such valuable insights. Here’s another great conversation taking place on Connect about gastroparesis:
– Does anyone else have Gastroparesis not caused by diabetes? https://connect.mayoclinic.org/discussion/does-anyone-else-have-gastroparesis-not-caused-by-diabetes/
We sincerely look forward to getting to know you better.
@ohimsick, a few members have also posted about Raglan; may I ask what concerns you about taking this drug? Which proton pump inhibitors have helped you most?
@xcinsanx, you mentioned that your husband was a high-risk patient; would you be able to share a few more details?
I have idiopathic gastroparesis and am not diabetic. I have had the gastric pacemaker implanted in my stomach since 2012 and it’s going well. My Dr. told me not to take Raglan because it can cause Parkinson’s disease. If you have any questions feel free to ask me. Kathy
PLEASE look into vascular compressions – MALS – Median Arcuate Ligament Syndrome and other abdominal compressions.
Glad to hear the pacemaker is working for you and thanks for info on Raglan
Your so welcome:)