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Frontoparietal Meningioma: Anyone else?

Posted by Kw @kellieboothwalker, Jun 9 9:28am

I was diagnosed 4/21/2026 with a 1.3cm Right Frontoparietal Meningioma. I went to the er with dizziness like no other I had ever had, nausea, some tunnel vision, and then developed right-sided tingling and numbness. Ruled out stroke and had MRIs with and without contrast. Then referred to neurosurgeon and neurology. Neurology did assessment and noted I have some possible neuropathy on right and left side. Did some labs and they were all normal. I am now having an EMG and mri of the cspine this upcoming friday. She wasn't convinced my symptoms were coming from the meningioma and maybe they aren't. I have had some balance issues randomly since last year and notice some word finding issues this year prior to finding out about the meningioma. Repeating MRI in august to see if any growth. Just wanted to hop in on the support group site. I like to see other stories and follow ups.

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dbicher | @dbicher | Jun 22 2:28pm
In reply to @kellieboothwalker "@dbicher I thought I sent a reply to you, but I don't see it. If this..." + (show)
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@dbicher I thought I sent a reply to you, but I don't see it. If this is a repeat, apologies (trying to figure this system out). Did they do an EEG to diagnose the silent seizure? Just wondering how it as diagnosed since you are on medication. They gave me 2 doses of Keppra in the hospital but didn't continue it since my EEG was normal and didn't indicate seizures. The side effects of some of the antiseizure medications are sometimes awful along with neuropathy medications. I will continue to pursue the reason for my symptoms. Are your repeat MRI's showing no growth?

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@kellieboothwalker Hi Kellie: I call it a ‘silent seizure’ since it wasn’t an epileptic (moving) kind of seizure, just me staring at the wall. Luckily my dog barked until my son came in! I remember almost nothing about going to the hospital, so no idea what tests were done, which is not a bad thing! I’ll ask my PCP next time I see her what tests were done. It’s been 2+ years and I’m only now forcefully pursuing why I can’t walk any distance and don’t have any energy. My new cardiologist is checking my heart for atrial fibrillation, but he says both my ECGs look fine. I see my neurologist regularly, have my yearly MRIs (no new growth), a
podiatrist visit, a neurological nerve test, etc. Every doctor says I don’t show any physical or neurological problems, but they do believe me now and keep searching. As I said earlier and truly mean: “Keep taking any tests suggested, going for your MRIs, and don’t ever give up! I’m rooting for you.” Good luck, Deb

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dbicher | @dbicher | Jun 22 2:33pm
In reply to @dbicher "@kellieboothwalker Hi Kellie: I call it a ‘silent seizure’ since it wasn’t an epileptic (moving) kind..." + (show)
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@kellieboothwalker Hi Kellie: I call it a ‘silent seizure’ since it wasn’t an epileptic (moving) kind of seizure, just me staring at the wall. Luckily my dog barked until my son came in! I remember almost nothing about going to the hospital, so no idea what tests were done, which is not a bad thing! I’ll ask my PCP next time I see her what tests were done. It’s been 2+ years and I’m only now forcefully pursuing why I can’t walk any distance and don’t have any energy. My new cardiologist is checking my heart for atrial fibrillation, but he says both my ECGs look fine. I see my neurologist regularly, have my yearly MRIs (no new growth), a
podiatrist visit, a neurological nerve test, etc. Every doctor says I don’t show any physical or neurological problems, but they do believe me now and keep searching. As I said earlier and truly mean: “Keep taking any tests suggested, going for your MRIs, and don’t ever give up! I’m rooting for you.” Good luck, Deb

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@dbicher Kellie: I just realized that you mentioned the Keppra and Vimpat that I take daily. I’m going to check on whether they could be causing my symptoms. Leaving no stone unturned! Thanks, Deb

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Maryann | @mkoch | Jun 22 6:31pm
In reply to @dbicher "Hi: my thoughts are with you. Sounds like what I went through 2+ years ago. I..." + (show)
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Hi: my thoughts are with you. Sounds like what I went through 2+ years ago. I had a silent seizure, the hospital did an MRI and found a golfball sized benign tumor in my front left forehead. Said it may have been slowly growing for 20 years. Who knew? I thought I was just depressed. I went from barely walking or talking to close to normal within a few days. But the seizure medications I take now have really messed up my energy and balance, and altogether I’ve “missed” a few years of my life. I now also have pretty severe neuropathy, which has really curtailed my life. I’ve had so many neurological tests, nerve tests, cardio tests, etc. but all the results are normal. Does it have anything to do with the brain tumor? Again, who knows? Keep taking any tests they suggest, going for your MRIs, and don’t ever give up! I’m rooting for you.

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@dbicher: Did you have the golf ball size tumor removed or radiated? Or just leaving it alone and taking anti-seizure meds.

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dbicher | @dbicher | Jun 22 7:50pm

Hi Maryann: I always say that they scooped it out with a tablespoon. LOL! No radiation, I guess because it was benign. They were surprised at how large it was. But the operation was minimally uncomfortable. Loved those staples though! And as I said, my brain was pretty much right back on-line within a day or so. The neuropathy, balance, and energy issues came a bit later. Had no idea the problems that getting older would cause! Gotta laugh…

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