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kathryn04

FRONTAL LOBE, DIMENTIA WITH LEWY BODIES AND PROGRESSIVE SUPRANUCLEAR PALSY

Posted by @kathryn04 in Just Want to Talk, Apr 5, 2012

HELLO- IM NEW TO THIS SITE AND AM LOOKING FOR ANYONE WITH ANY OF THESE DIAGNOSIS; MY HUSBAND IS SUSPECTED OF HAVING 1, 2 OR MAYBE EVEN ALL OF THEM ALTHOUGH NO DR CAN AGREE. I AM LOOKING TO SPEAK TO SOMONE WHO IS LIVING WITH THIS SO I CAN GET SOME INPUT ON THESE AND HOPEFULLY GET A SPECFIC DIAGNOSIS

Tags: dimentias

nancyoneil

Posted by @nancyoneil, Apr 7, 2012

I TOO AM NEW AND TRYING TO FIGURE OUT THIS ON-LINE STUFF. I HAVE HAD NO LUCK GETTING MY HUSBAND DIAGNOSED. HOWEVER, I HAVE FIGURED IT OUT MYSELF BY READING TWO VALUABLE BOOKS. (1) THE 36-HOUR DAY WHICH IS A CAREGIVERS BIBLE AND (2)PASSAGES IN CAREGIVING BY GAIL
SHEEHY.I ALSO BROUGHT UP VASCULER DEMENTIA ON MAYO'S WEB SITE AND
THERE, RIGHT IN FRONT OF ME A LIST OF SYMPTOMS OF WHICH HE HAS ALL OF THEM!! I ENCOURAGE YOU TO DO YOUR OWN RESEARCH AS MOST DOCTORS DON'T WANT TO DEAL WITH THIS STUFF. GOOD LUCK...YOU ARE IN MY PRAYERS AS THIS IS A VERY DIFFICULT JOURNEY!!!!!!!!!!!! NANCY

kathryn04

Posted by @kathryn04, Apr 11, 2012

Thank you for the insigt- I too am readying the 36 hour day...but again I am not convinced the dr's are right. I hate to be so skeptical but ....so we shall see. Going to another specialist in Pittsburgh on Thursday so I am anxious to see what he t hinkgs

nancyoneil

Posted by @nancyoneil, Apr 11, 2012

KATHRYN............1ST, WHAT ARE YOU DOING BEING UP AT 4:45 AM? THIS
"POST" WAS EASY SO I AM ENCOURAGED. YOU DID NOT SAY WHO YOU
ARE TRYING TO GET DIAGNOSED? GOOD LUCK ON THURSDAY AND LET
ME KNOW WHAT YOU FIND OUT.
YOUR NEW FRIEND.....NANCY

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