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Frontal Lobe Dementia

Posted by @georgiefaris in Brain & Nervous System, Jan 30, 2012

My husband has been diagnosed with frontal temporal dementia. I have trouble dealing with his behaviour when we are out in public. His behaviour at home is very trying. He is very beligerant and aggressive. I need help at home but he won't allow anyone to come in. He is having a lot of difficulty with swallowing and is choking quite frequently.


Posted by @powerofpositive, Feb 1, 2012

You need help it sounds like. Have you discussed this with his doctor (behaviors and choaking)? Ask for help. There are agencies in most communities that can come to your home and give you a break. Are there relatives near that can pitch in? Hope things get better.


Posted by @georgiefaris, Feb 1, 2012

He has seen many doctors. I have talked to Community Care Access and they have him on the list for long term care but since he can still dress himself and shower on his own and make a sandwich he is not considred for in home help yet. I signed him up for the VON day program but they said his behaviour was very inappropriate and they had too many complaints from the elderly ladies so he can't go any more. I can pay to have VON come in the home but he won't let them. I sometimes feel like a prisoner in my own home. I am afraid to leave him alone because of the choaking and swollowing difficulties.


Posted by @piglit, Feb 4, 2012

Hi if you can get an assessment of your husbands condition with the dementia you may be eleigible for in home help. If you can make an appoinment to see you own doctor he may be able to help you. I work with people who have dementia and it is common for behavioural issues to sometimes occur. This can be caused by frustration that your husband is feeling with the dementia. Also swallowing can be an issue as well try soft foods and drinks that he can manage better. Good luck, and if I can help you in anyway I will try.

Happy Place likes this

Posted by Anonymous-51f58754, Feb 10, 2012

I hope you are using a thickner for his food and register with agency like visiting nurse service for assessment.You might be lucky to get an home health placement which will help lessen the burden.I know how difficult it is to trust a stranger into your house but you have to try and pray.


Posted by @happyplace, Feb 4, 2012

I am an In Home Health Aid working locally. Many CNAs / HHAs have a lot of experience working with Alzheimers and Dementia clients. The biggest difficulty is Funding their services.
Most of my clients have Long Term Health Care Insurance. I dont know how to advise you about finding a local program to suit your needs in your area, but I do want to assure you once you find one, let the Care Provider handle taking care of your husband. They are trained to do so. Have faith, in their profession. You will feel so much better once you have assistance.
I do wish you good luck in finding the right program to help you. Once you do, let them do what they do best. Maybe start with just 4 hrs a week until he gets used to the CNAs face. Then, bump it up. I do feel for you. Try bringing someone in the home again. It may take a few attempts until you find the right person compatible with hubby. Good luck Sweetie.


Posted by @georgiefaris, Feb 7, 2012

Thank you very much for you response. I am still trying to get him to agree to having someone come in the home. I will be seeing his doctor tomorrow and will ask her to suggest it to him too. I will keep trying.


Posted by @piglit, Feb 8, 2012

Good luck hope all goes well I'm sure it will


Posted by @missyalora52gmailcom, Mar 13, 2012

Try introducing an Aid to your husband that is dressed in regular clothes, not scrubs. Maybe you could say it's a friend, and slowly integrate them into your husbands and your life. Sometimes the professional clothing scares people . I used to be a CNA then a private caregiver, and everyone loved my simple, homey, friendliness. I was a friend to all my clients, and they loved it. It's worth a try. Hope this helps , because it sounds like you could really use help.


Posted by @kathryn04, Apr 5, 2012

my husband is suspected of maybe having FTD also- I am curious though by what you mean about how is behavior is inappropriate. Can you be anymore specific because I don't think my husband has this. How is your husband's memory? Anything you can prrovide wil lbe helpful


Posted by @georgiefaris, Apr 5, 2012

My husband says what ever is on his mind. He has no inhibitions. When we were out for dinner with friends at a very fancy restaurant the lady came to our table to see if we were pleased with our food and the service. She was wearing a beautiful pant suit and my husband told her to get her hands out of her pockets because people would think she was playing with herself. We were mortified. He told a lady recently that she had ugly legs. My friends daughter was very excited because she had just found out she was pregnant - Ron said to her that he knew what she had been doing to get that way". It sure spoiled the moment for her. That is the kind of thing he does. Every time we are out, I am on edge because you never know what he is going to say. At home he is very irritable and stubborn. He pouts like a little kid. He also has a very bad tremor in his hands and lips and chokes quite frequently. People with frontal tempotal dementia can have a lot of difficulty with swallowing and eventually they can lose the ability to swallow and speak.

His short term memory is not as good as it was but with FTD it is more a behaviour problem than a memory problem. I took him to 2 neurologists and then took him to Baycrest in Toronto. It is one of the best Brain Hospitals in Canada. We were there for 3 nights and 4 days of testing. That is when the diagnosis was confirmed. If you have concerns, get a 2nd opinion. I had to because he wouldn't listen to the first 2 doctors. Hope this is helpful. If you have any other questions I would be happy to answer. I go to a support group once a month. It is a godsend for me. They give a lot of insight in how to deal with some of the problems because they have experienced the same thing. I have a book called "The 36 Hour Day". It is a family guide to caring for persons with alzheimers disease and related dementias. It is writtend by Nancy L. Mace and Peter V Rabins. This book is endorsed by many specialists in the brain disorder specialties.


Posted by @gapeach, Jun 17, 2012

Hi Georgiefaris, My husband has ftd and he can act like a 4yr old, he throws his pills fights, will not put his seat belt in the car, hides everything, so we have learned not to put anything he can take because we spend hrs looking for it,his Dr is very good he made him take a driving test and of course he did not pass the questions they asked, he got so angry he took off and I had to have the police find him because we were out eating and he would not get in the car, this was the best thing because they took him to senior lock down at one of our hospitals and kept him for 11 days getting his meds right and now he goes to day care 3x a week and he loves it, they tell him, he is helping out, but you have to find day care with men also not just women, this was the second one I took him to. My mothe died from alzheimer and Dementia is so different, he looks fine untill you start talking to him, he makes no sense whe he talks and it is getting worse.
My husband has had FTD for about 5ys, and they say this one progresses more quickly than Alzheimer. Find yourself a good group meeting, and you can get a lot of info that will help, contact the Alzheimers office in your town. Best wishes Ga Peach


Posted by @georgiefaris, Jun 17, 2012

My husband was going to the seniors day program for 3 weeks. I was told that he could no longer attend because his behaviour was so disruptive. Everything he says has a sexual innuendo and the other attendees found it very upsetting. Especially the older ladies. He was also harrasing the caregivers. I am finally getting care in the home now for 14 hours a week. That just started 3 weeks ago. That is working out very well. He was dead set against having someone come in but they girl they send is a gift from God. They hit it off immediately. I am so thankful.

I have noticed another decline in him in the last week or so. The caseworker noticed it too. He also has COPD and has a lot of difficulty breathing. I was told at one of the courses I took at the hospital that any time you notice a change that he should go to the doctor and have his urine checked. Sometimes an infection can cause changes. I will be taking him this week.

I attend the Alzheimer meeting all the time. They are extremely helpful.

Best wishes Georgie

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