I have a question for those who have follicular lymphoma. After 3 years of having symptoms from CT Scan which the radiologists said were “possible indolent processes”, I finally went around my physician to an oncologist who wanted to “wait and see” since my bloodtests were good. Finally after a number of CT scans and one PET scan and continued waiting, I pulled rank and went to a surgeon who removed a suspect lymph node, diagnosing follicular lymphoma. Very tough surgery and I was hospitalized for a week. A follow up bone marrow aspiration showed ~25% cancerous cells by volume, putting me at stage IV. I am now on a rituxan series and my blood still looks good, no signs of anemia. Only parameter out of normal range is RWV (red cell width variance) which is low. Here’s my question: Over the past 3 years I have experienced constant and at times severe fatigue and severe muscular leg pain in specific spots that don’t move around. Also my legs jerk, especially at night (restless leg?). I have fallen once already. XRAYS and back CT scans look good. Current medical opinion is that the fatigue and pains are “probably” not related to my cancer. Can anyone share any similar experience and the final diagnosis? Personally I am convinced its all related due to other details too lengthy to include. My oncologist is top notch and will eventually lead to me to an answer, but a shortcut would be great! He listens very well to my ideas and is always open to suggestions.