Mayo Clinic Connect
Anybody here dealing with membranous?
I would like to here how outher are dealing with this!
If I understood your one post about flank pain, it rang a bell. After I had several types of chemo for cancer, my Oncologist would ask if I had any pain or flank pain? What it turned out to be was that adriamyacin and streptozocin intraveniously for 2 cycles had lowered the efficiency of my kidney operation, that’s why he said it was often in the flank area of the back amidst the kidney area. Chemocare.com can note these things. It can also be that you should inquire about seeing a Nephrologist for the cause of it–maybe a reactio, possibly a cyst, maybe cancer, who knows without testing?
I guess I don’t know about flank pain or membranous, but I recentlyexperienced sharp pain in that area of my back. As it was a new symptom Ibegan to wonder if it was kidney related. I read about kidney stones anddecided to go to our local MAYO Urgent Care. They convinced me I was havingmuscle issues and took and xray which showed degenerative arthritis and adegenerative disc, both signs of wear and tear over the years. I’m 74. Ihave worked with a Physical Therapist who targeted my problem areas. Now Ihave relief if I keep up with my stretches and strength exercises.
Good to hear, @bob270. My experience almost exactly after I dismissed my PT trainer who had worked me over for a diagnosis like yours, although my main problem was inflammation of one sacroiliac joint.
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I learned about sciatica when I drove a utility truck for the GAS Co. I had my billfold in my back pocket. One evening my entire right leg felt like it was on fire from my hip to my ankle. I put my billfold in a front pocket now. Recently I learned that bucket seats are bad as well. I have a cushion that raises my hip tot he level of my knee. One lady told me her husband had to get rid of his car with bucket seats. SHEESH.
Your billfold is an interesting wrinkle @bob270. I had the same instigator, but as I noted before, it pressured my sacroiliac joint, causing it to inflame. That’s the malady I had when I went to the osteo surgeon. I dropped him when he missed the diagnosis and wanted to go directly to pain injections — about the same time I dropped the PT trainer. Stretching and strength exercise proved to be the solution, along with glucosamine which seemed to fix the joint problem. NOTE: I have had bucket seats on two cars for 12 years, without problems!
I remember hearing my grandmother saying, “Oh my aching sacroiliac”. Yoursituation is the first I’ve heard of it in 60 years @predictable. I’mwondering how you tolerate bucket seats unless you aren’t doing long daysbehind the wheel. Years ago I got symptoms after days on the road duringvacation trips or cross country moves. I didn’t know it was sciatic nerveand the ache would clear up in a day or so. When I drove utility truck itwas long days for many months and I paid dearly. It cleared up in about ayear. Now that I’m retired I like to do road trips and began to experiencethe old aches again. A chiropractor told me I also had trouble with a hiprotater. The PT lady had a more complete name for that muscle. Between thetwo I can stay out of the trouble.
You’re right, Bob, I don’t do much cross-country driving in my bucket seats — couple of times a year for 2-3,000 miles max over a week. Doing that again next week. Perhaps your “hip rotator” muscles are the adductors (three of them — major, minor, and maximus) which run down inside your pelvis. I had to stretch and exercise them to overcome pain that my osteo doc thought was spinal pain. Loosening and strengthening the adductors was pivotal to ending my pain. Can’t say I know anything about sciatica, which I thought I had, but it turned out my doc and I were wrong on that!
yes i do see a nephrologist, and i have cyst in my kidneys, also I’ve been treated with rutuxan-a chemo type iv drip
drug that slowes the destruction, of my kidneys,,,,,,,,,,,,
their is times that i hurt so bad i cannot even bend over,,,,,daily like 4 pm in the pm i take my 2 nd oxycontin, 12 hr delay med
and hydromophine for break thru pain,,,,, this been going on for 6 years!!!!!!
also iam searching for any body that has membranous, i would really like to see how their doing!!!!!!!!!!
god bless and carry on!!!!!!
Relative to your note, I think you are likely on the right track; although, having gone on this long–I would be in the process of validating what the previous doctor and treatment had me on. With my Islet Cell cancer several cysts were seen on the Octreotide Scan, which I looked into. I found out a couple of things (1) my cysts weren’t specified as a specific type. Consequently, having Tuberous Sclerosis in my body and that it is a carrier of the Chromagranin A marker for Islet Cell Cancer—my research indicated that it would often be a clear fluid. But nothing else. Also, Tuberous Sclerosis Allianz pointed this out. On the other hand, (2) items have been written about kidney cancer. And that is one of the Targeted Chemos ‘Affinitor’ that came to be. I’d seek a second opinion from another Nephrologist and update all my symptoms and medicines taken.
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