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Fixed Dystonia/Stif Persons Syndrome

Posted by @twirlgirl101 in Brain & Nervous System, Mar 26, 2012

I have been diagnosed with a fixed tuncal dystonia for about a year. Since the fall of 2010 I have been experiencing a trunk shift where my head is no longer the center of my body, but is instead beyond my right leg. My muscles are so rigid and the only time they relax is when I am put to sleep for a test. I have tried numerous medications for dystonia and none have seemed to work. Next week the doctor is going to try to cast my back to try and get me straight. I went to the Mayo Clinic in January and they decided that this is possible a case of stiff persons syndrome. Has anyone experienced anything similar to this?

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