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Becky R
@breatherford

Posts: 2
Joined: Aug 17, 2015

Five years ago, I had to have an emergency hysterectomy with delivery [...]

Posted by @breatherford, Aug 17, 2015

Five years ago, I had to have an emergency hysterectomy with delivery of my son. A couple doctors told me that I am lucky to be alive after that procedure and have had more procedures in my abdomen area since that time. Around Christmas, my stomach swelled overnight to where I look 8 months pregnant. It is almost daily that someone asks when I am due. I have gained 45 pounds and went from wearing a size 8 to barely being able to button a 14. I have seen every doctor imaginable – have been to a colorectal surgeon, a GI doc, pelvic floor therapy, therapy to release scar tissue in my stomach, OB/GYN, urogynocologist, lymphedema specialist, you name it. My stomach never goes down at all – no matter if I prep for a test that requires me to drink tons of laxatives and use an enema. I have been tested for celiac disease. All tests come back normal. I am nauseous a lot, short of breath, beyond tired, have pelvic and back pain and pressure. My normally low blood pressure has shot up to staying around 156/94 so I am now on medicine to control that. I am a mother of 4 (who is not able to be a “normal” mom) and am struggling with my issues and not finding any relief. Every doctor I see agrees there is a problem, but no one knows what the issue is or seems to care how it is effecting my life. The most recent came back that it is probably just IBS. I have ran out of my FMLA and all of my leave at work and am on the verge of being let go because of not being able to work 8 hours a day. I do have an appt scheduled at the Mayo Clinic in September and have been gathering all of my records from various doctors, various tests, etc. I don’t know where else to go and pray that going through the expense of getting to my appt. and staying for testing will work in my favor.

REPLY

Wish you great luck and good doctors who can diagnosis the issue and get you back into shape. It is just horrible being big in the belly and not being able to do anything about it.

HI BECKY, YOU ARE MY VERY FIRST REPLY. I JUST REGISTERED FOR THE BLOG SIGHT AS I AM IN MY NORMAL POSITION WHICH IS STUCK IN HOME IN BED. I HAVE BEEN SICK WITH GENETIC DISEASES, CONNECTIVE TISSUE DISEASE, SEVERE FATIGUE AND JOINT PAIN SINCE THE AGE OF 24. I HAVE BEEN TO MORE DOCTORS IN THE PAST 28 YEARS THAT I FEEL I COULD BE ONE. I HAVE BEEN TOLD BY 10 COLORECTAL SURGEONS THAT DUE TO MY CONNECTIVE TISSUE DISEASE, MY MAIN CONCERN WHICH IS MY BLOCKED COLON, THE SURGEONS SAID IT CAN’T BE REMOVED. BASICALLY I WAS SENT HOME TO DETERIORATE AND WAIT UNTIL I BECOME SEPTIC AND DIE. I DO HAVE SOME THOUGHTS AND IDEAS FOR YOU, BUT EVEN AS I WRITE THIS I AM GETTING DIZZY. LET ME KNOW IF YOU WOULD LIKE TO CHAT MORE AND I WILL BE IN TOUCH!!

Thank you for responding. I would love to have any suggestions. My biggest fear is that i am going to go to the clinic and not get any results to solve my issues as i have been from every doctor so far.

@breatherford

Thank you for responding. I would love to have any suggestions. My biggest fear is that i am going to go to the clinic and not get any results to solve my issues as i have been from every doctor so far.

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HI BECKY,
WHEN IS YOUR APPOINTMENT AND WHERE DO YOU LIVE. I NEVER DO BLOGS OR SOCIAL MEDIA. IE FACEBOOK ECT…. I AM RESPONDING TO THIS E MAIL AND ASSUMING IT WILL GO ON THE MAYO WALL.
IT WOULD BE MUCH EASIER TO SPEAK ON THE PHONE, BUT I DON’T WANT TO POST?MY NUMBER?ON THE BLOG.
WHEN YOU GET THIS…..PRVATE MESSAGE ME…IF YOU WANT TO TALK.
AS YOU CAN SEE FROM MY E MAIL, I HAVE 4 CHILDREN AS WELL.
KATHY

WE COULD ALL USE A DREAM, A GENIE OR A WISH TO BACK TO A PLACE, MUCH SIMPLER THAN THIS!!

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