Anyone diagnosed with Interstitial Lung Disease as a result of COVID?

Posted by Lucy @welchllb, Jun 17 10:31am

Has anyone been diagnosed with Fibrotic Interstitial Lung Disease as a result of Covid?

Interested in more discussions like this? Go to the Post-COVID Recovery & COVID-19 group.

@welchllb, just a few days ago a new member, @bentleyoakguy, posted a similar question about COPD.
– Has anyone else been diagnosed with COPD after COVID? https://connect.mayoclinic.org/discussion/new-guy-looking-for-answers-path-forward/

Lucy, did you have lung issues before COVID? What treatment options have been discussed with you?

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I have been told that I "likely" have COPD by my PCP but have had no testing to confirm. I had COVID 7 weeks ago and tested positive for antibodies in fall 2020. I have never had any breathing issues before this and was not ever a smoker.

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@colleenyoung

@welchllb, just a few days ago a new member, @bentleyoakguy, posted a similar question about COPD.
– Has anyone else been diagnosed with COPD after COVID? https://connect.mayoclinic.org/discussion/new-guy-looking-for-answers-path-forward/

Lucy, did you have lung issues before COVID? What treatment options have been discussed with you?

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No, I did not have lung issues before Covid. I did have acute pneumonia with Covid. I am actually asking the question for a friend, however, I still have Shortness of Breath with exertion – sometimes just minor exertion, like unloading the dishwasher. I never know whether to push myself. If I feel ok while doing something, like weeding, I don't stop to rest. Last week I had a major episode about 30 minutes after gardening – not fun. It's been at least a year since my lung tests – wondering if I should revisit them with my doctor.

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I also had pneumonia with the Delta varient and spent 3 weeks in the hospital. That was Oct/Nov/2021. In February I was admitted in the hospital for three days, for extensive testing. A nurse told me it sounded like I have long covid. I never heard of it before, and no doctor will confirm it. Anxiety, stress are the culprits. At this point I cannot walk across the room without the labored breathing coming on. Just like you, any exertion brings it on, also with extreme hot flashes, and absolutely incredible perspiration. Perspiration is constant, and comes on with just sitting as well.
I have worn a heart monitor for testing heart functions, with no major findings, a recent visit to the hospital showed no issues with my lungs–although I am a former smoker and have had severely extensive pulmonary embolisms. I am now looking for an endocrinologist. My next doctor will be a pulmonary specialist.
I would certainly have all the testing and more done. It seems like the symptoms are with you for more than a year now. I can't take the smell in my nose for a year, or the trembling hands, or the body jolts at night.
I would like some answers, and some credibility.

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