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Mare
@mare

Posts: 5
Joined: Jul 10, 2011

Fibromyalgia

Posted by @mare, Jul 10, 2011

Community for those who have been diagnosed or who want to know more about the syndrome.

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Bern1234
@bern1234

Posts: 2
Joined: Jul 14, 2011
Posted by @bern1234, Jul 14, 2011

I have had fibromyalgia for about 2 years I just take my meds and live with it . I just started exercing and sometimes I make it and sometimes I don’t. I also suffer from a stomach condition were I can feel fine one minute and then the next I am in bed with a very bad pain, and can stay there days.


Bern1234
@bern1234

Posts: 2
Joined: Jul 14, 2011
Posted by @bern1234, Jul 14, 2011

I also just started with almost white or clay colored stolls. does anybody have thath?


honeybee6636
@honeybee6636

Posts: 11
Joined: Aug 07, 2011
Posted by @honeybee6636, Oct 17, 2011

Hi Bern, I was wondering what meds you are taking for Fibro? I just started Savella. I hope it works. I am sorry your having a hard time.


Useless
@useless

Posts: 20
Joined: May 10, 2012
Posted by @useless, Jun 13, 2012

I am 53 and was diagnosed about a year and a half ago. Thought I had the flu at first then saw a multitude of doctors and finally got diagnosed. Fight with insurance company to let me keep doing aquatics therapy. I take 2400mg of neurontin a day along with a generic extra
strength Excedrin. I did the 3 week pain program there at Mayo which helped. Got home and had no place to exercise so am back to square one. So depressed. Am seeing someone in July about electric shock therapy since all antidepressants make me sick. Hate this illness and hate life. All friends are gone.


Useless
@useless

Posts: 20
Joined: May 10, 2012
Posted by @useless, Jun 13, 2012

To Bern1234 I think you need to see a doctor. That is definitely normal


debgivan
@debgivan

Posts: 2
Joined: Aug 16, 2011
Posted by @debgivan, Aug 16, 2011

I am just beginning to deal with the diagnosis of fibromyalgia. Just wondering what medications worked best for you.


Aleta
@aleta

Posts: 4
Joined: Jul 24, 2011
Posted by @aleta, Aug 16, 2011

I have had fibro for about 13+ yrs. I am about at my wits end. As of right now, I take 3600mg. of neurontin, 200mg of savella plus sleeping pills. If I didn’t take the neurontin, I wouldn’t be able to walk. Soft exercise if you can. I work in a factory with concrete floors, I go home hurting. I do take pain pills or else i couldn’t work. Some days are bad some aren’t so bad. Good luck. oh yeah, I’m 48.

Liked by Useless


jsorum
@jsorum

Posts: 12
Joined: Jul 11, 2011
Posted by @jsorum, Aug 17, 2011

Have you thought of getting a new job. I was on my feet all the time at my old job and I would just go home and go to bed. Since i found a job where i sit most of the time i can tell a big difference.


debgivan
@debgivan

Posts: 2
Joined: Aug 16, 2011
Posted by @debgivan, Aug 17, 2011

Thanks for your reply. I will see my dr. tomorrow and hope to get him to work with me on a plan. I am 52. I work in an office but I go home exhausted. I take antidepressants already which helps some but I can’t sleep and I take Vicoden to get through the day because of the pain. I will let you know what he says.


Lovie
@lovie

Posts: 5
Joined: Aug 17, 2011
Posted by @lovie, Aug 31, 2011

I have just been diagnosed w/ fibromyalgia and the doctor started me on Cymbalta, I also take Tylenol Arthritis. This diagnosis is a difficult one to deal with. Hope you feel better soon.

Liked by Useless, Anonymous


Mari-Denise
@maridenise

Posts: 5
Joined: Sep 18, 2011
Posted by @maridenise, Sep 18, 2011

Hi, I was diagnosed with Fibro 8 years ago. In the last 3 years have been taking Lyrica. It takes the edge off is the best I can say.


Mari-Denise
@maridenise

Posts: 5
Joined: Sep 18, 2011
Posted by @maridenise, Sep 18, 2011

Does the Tylenol Arthritis help you?


Lovie
@lovie

Posts: 5
Joined: Aug 17, 2011
Posted by @lovie, Sep 19, 2011

Yes. My doctor suggested I take the Tylenol Arthritis along with Cymbalta. I take 2 every 6 hours. I also take .25Mg Zanax for anxiety. The combination of drugs help. I am a property manager and work long hours. I feel better now than I have in 9 years.


Coca-cola
@cocacola

Posts: 1
Joined: Oct 16, 2011
Posted by @cocacola, Oct 16, 2011

I am on my feet all the time & I have so much foot pain & am so tired all the time. I come home & go to bed. I’ve thought about getting a desk job, but I am 59 & finding a job isn’t easy. How are you doing?

Liked by Anonymous


phinze
@phinze

Posts: 10
Joined: Nov 11, 2011
Posted by @phinze, Nov 11, 2011

I was diagnosed three years ago. My husband and I have a dairy farm, but I couldn’t do the work anymore, so I went back to working in an office. It’s not that much better – I have a heating pad on my back and shoulders almost all of the time or I can’t stand to sit in the chair. Doesn’t seem like there is a happy medium with this stuff!

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