Community for those who have been diagnosed or who want to know more about the syndrome.
I have had fibromyalgia for about 2 years I just take my meds and live with it . I just started exercing and sometimes I make it and sometimes I don't. I also suffer from a stomach condition were I can feel fine one minute and then the next I am in bed with a very bad pain, and can stay there days.
I am just beginning to deal with the diagnosis of fibromyalgia. Just wondering what medications worked best for you.
I was just diagnosed in March with fibro. I tried medications but found that I had too many side effects from them. I am now taking nothing and learning how much my body can handle in one day. Of course if I have a flare it is different. I also have two small children so they get most of my energy. I have had to switch jobs.
I have had fibromyalgia for 14 years caused by whiplash and other soft tissue injuries from a car accident (hit from behind). The only thing that really works for me to relieve the pain is full body acupuncture. I
I was diagnosed with fibro last spring after an accident two and a half years ago. Am weaning off cymbalta (too many side effects, hypertension was the last straw ). Has anyone weaned off this stuff? I feel like I can't do anything. Am weak dizzy can't drive been in bed for better part of a week. Have kids and need to get my life back. How long does withdrawal take? Anyone know??
Does any type of bed help with sleeping? A foam mattress? More firm?
I was diagnosed about three years ago after an autoimmune issue in my eyes. I'm at my wits end. I tried Cymbalta and have to stop due to side effects. The docs wants to try a different med, but honestly, the side effects look terrifying! Any suggestions? Lyrica's side effect list is pages long! Is anyone taking this?
Hi I was diagnosed about 6 yrs ago and refuse to take any Western meds. However, I do see an Herblist. I read so much literature and found that Fibro ppl don't repair the way other ppl do. So, i found a herb that works. Its called Fibroresponse abd contains a lot of Magnesium and Malic Acid. I also take natural Anti-inflammatory, flax seed oil, amd melatonin. I am doing pretty well and I exercise 3-4 times a week. Would be interested in sharing with others an trying to help others on the road to recovery. There is life with Fibro. Keep looking forward and feel free to contact!!
I am 57-hard to admit-but I only say this to let others know that I have lived with Fibromyalgia since I was 21. Of course the doctor thought it was some form of arthritis back then. Recognizing it and taking action early on has helped me be in shape to raise six children and now be an active grandmother and college student. The following are things I've resigned myself to:
* For 13 years a little pill (about 50 mg or more) of imipramine worked. It helped with sleep and with the pain.
*After trying Lyrica, Cymbalta, amitriptyline and MORE, I have settled on Ibuprofen with Tylenol 4 one day and the next Lortab and Ibuprofen. For the night time i switch every third day with soma, cyclobenzaprine (3- 10 mg tabs), and tamazepam (2-15mg tabs). The switching off helps prevent the building up of a resistance to any one pill and prevents having to increase doses. I do NOT like doing all this for the addiction reasons, plus what it is doing to the heart and liver (over time). My doctor is a good man but even he does not like seeing me take so many different meds. And in spite of all this, I still live with pain. In other words, this does not take all the pain away! Oh and I take about 1 Xanax (divided into thirds) a week.
*My stomach is inflamed and acid reflux is always a problem along with bad pains that occur after eating certain foods. So right now I am keeping a food diary and trying to eliminate what causes pain.
*I read an article that said carbs are not friendly to fibro-patients, which I have suspected for years (but my body seems to crave them-probably because of medications).
*Vitamins and supplements are a big part of each day. (Calcium, magnesium, malic acid, vitamin C, D and E, etc.)
*Stress, as most of us know, makes this condition worse.
*My regular exercise involves water aerobics in winter and biking in summer. Feet problems prevent long walks.
I would love any suggestions or even warnings. I try to keep a positive outlook but the pain affects everything I do.
Hello 🙂 I am 26. Diagnosed 4 years ago with fibro. The pain and symptoms have gotten worse and debilitating! I have two small children and I am a single parent having a very difficult time just getting by. I've read about some trigger point injections done at UCLA that helped other fibro patients. Has anyone tried it? I've tried every medication that has been offered for fibro patients nothing is helping. Ideas? Help!!!!
I was just diagnosed in Feb of this year with FM-think I had it longer. I am taking gabapentin 200 mg (neurontin). Seemed to help me. Doctor told me to keep moving and I am getting around a whole lot more than I did. I will start water therapy as soon as I get rid of urinary tract infection and then learn some other exercises. I am 65 and happy to know I don't have bone cancer. I have friends around here (TN) who've had FM for 20 + yrs and they're still moving , so don't give up. Work and rest and eat healthy. Good luck.