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Posts: 6
Joined: May 07, 2012

Fibromyalgia or not

Posted by @fearless, Jun 1, 2012

I was diagnosed with Fibromyalgia in March. I also have other symptoms such as : chronic depression, anxiety, insomnia, ADHD , seizures , low grade fever, little ambition or drive to do anything. I also use to ride jumping horses and suffered compression fractures at L1, L2,and L3 at the age of 12. I also had a compression fracture at C7 at the age of 24. I also as a result sustained a shoulder injury which required two surgeries. Needless to say..I haven’t been the kindest to my body and totally expected aches and pains to rear their ugly head as I got older. Well, apparently that age was 32. After countless MRI’s and other diagnostics they decided to hang their hat on fibro. Not really sure if I’m 100% on board with that diagnosis. At one point I had a spinal tap that showed I had an infection in my spinal fluid but that kind of fell by the wayside. I have also been experiencing migraines everyday for the last three years. I am use to being very active and now it’s all I can do to get up to go to work or do anything for that matter. My hope is dwindling as well as my faith. It looks as if there is no light at the end of the tunnel. I’m ready to have my life back and hope to eventually start a family and move on. Any light anyone could shed on the situation would be much appreciated..

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Posts: 55
Joined: Jan 18, 2012
Posted by @marylynette, Jun 2, 2012

Please, please, please, don’t give up I, too, have been at the point of despair thinling that the future had nothing but pain and dioscomfort. I was 33 when I had to have an ileostomy and then they discovered that for me the cut did not cure my Ulcerative Colitis. I am now 62, and have lived with chronic physical problems as well as severe depression and PTSD. Somehow I have always found something to be glad about, and I will admit to a very close relationship with the Lord Jesus since I was a small chld. Last week I had reached the point of knowing I could not keep living the life I was being forced into by docs who wouldn’t listen. I prayed from deep within, with the Lord knowing that i understood he will not interfere with the actions of men. I told him that I did not want to keep looking back and see only one set of footprint…him carrying me. I prayed for him to help open the hearts of the docs so that they would see the reality of my life. After many years of my knowing I need IV hydration for my body to function, the cardiologist, the nephrologist and my doctor all agreed…..On Monday I will have a permanent port implaned in m y chest and will be able to receivethe fluids I need without rushed trips to the ER where it took 6 tries to get the IV in last time. I, too, have the diagnosis of Fibro, and have found that it is an illness which does seem to have no end to it. I have discovered that for me at least, hot baths withEpsom salts are of great benefit to a body filled with aches and pains. I had to give up playing the harp because of the pain. I am married (18 years in July) to a man who met me when I had the bag on my belly kind of ileostomy and the bag often leaked aned even fell off. He saw the me inside and was not turned away by the physical challenges of my life. Living with a disability such as you have, one that others cannot see and rarely understand, is a great challenge. Just know that you are not alone and there are many of us on this web site who understand the difficulties you are having. My prayers are with you…. and I send you a hug.marylynette


Posts: 6
Joined: May 07, 2012
Posted by @fearless, Jun 6, 2012

Thank you very much for your kind words and inspiration. Sometimes that is all a person needs to keep going:)

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Posts: 2
Joined: Jun 12, 2012
Posted by @serenity1, Jun 12, 2012

Hi Fearless You really have had many injuries of different kinds. You probably were treated for these and may have heard from the doctors you will have post problems thoughout your life. Although we deal with each one separately, some of you heatth concerns can be a part of the other on. I was diagnosed with fribromyalgia about 7 years ago and a process of elimination of other health conditions. Fibromyalgia, I learned can come as an onset having had surgery which can cause body stress and trauma, not to mention depression sets in because of fibro symtoms which can be over whelming even a cause for anxiety. I would encourage you to research fibrmyalgia and get as much inf as possible and get second opinions on your health issues in general if you feel it necessary. Serenity1

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