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Fibromyalgia Medications and side effects

Posted by @trouse in Just Want to Talk, Mar 28, 2013

I have some concerns w/ the way I am feeling. My Rheumatologist started me on Neurotin, had bad side effects and took me off of it. He is going to hold off on suggesting and trying another med due to me still having c-diff and the irritation it is doing to my intestines.
Is there anything opical out there for fibromyalgia?
The pain/ soreness/ weakness and fatigue is very uncomfotable and driving me crazy?

Any sugesstions? I left a message w/ my RD and got no reply yet!


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Roxie43 likes this

Posted by @useless, Apr 9, 2013

If you haven't gotten a reply, get another doctor. That is too long to wait


Posted by @trouse, Apr 19, 2013

I did get a reply but my specialist is waiting till my c-diff is under control and I am off on Vanco! Sorry it took me so long to reply!


Posted by @bearylynn, Apr 19, 2013

Lyrica worked wonders for me - at bedtime. Gained tons of weight right away, but didn't care because of how good it felt.

BUT -- legs swelled, liver enzymes increased. Enough to convince me to stop.

I haven't found anything I can tolerate for pain w/o groggy/draggy side-effects, including some topical (compounded Rx) analgesics.

Nurse Pract. recently recommended BENADRYL + MELATONIN 'cocktail' at bedtime. Worked great for sleep, BUT, also caused the groggy / draggy 'hangover.'

I use CELEBREX when pain is acute -- and it's great -- usually only about 1 pill, 2-3 times/week.

Recently, tried wrapping ELECTRIC BLANKET around my legs a.m. and p.m. 1-2 hours at a time -- decreases tightness/pain in my legs alot -- also helps w/ muscle spasms all over -- also helps digestion work better -- FEELS WONDERFUL!!!

Sick for years -- I purposely have avoided visiting a rheumatologist as the meds they prescribe I consider nasty and dangerous.

DITROPAN XL for colon, bladder, ureter spasms.

Anti-depressant for survival.

NUVIGIL- because of 'probable' narcolepsy.


Posted by @trouse, Apr 19, 2013

I know what you mean by side effects. I am seeing my specialist next month in May. I am very limited on what I can take due to allergies. I am using aspercream now and pain meds. Awful!!! Thanks for the reply!


Posted by @jeffinmn, May 15, 2013

I also had bad side effects from Neurontin, I just started Lyrica. So far so good... I also find trigger point massage therapy helpful.


Posted by @trouse, May 16, 2013

My rheumatoligist took me off of neurontin, I couldn't stand the side effects! He referred me to a specialist who does holistic therapy. No sure if this will work or not. Have you ever tried accupunchure?


Posted by @jeffinmn, May 16, 2013

I know it is hard, I just found out in April that I am going to live... Thought I was a goner for the last year. When you are sick, your friends will abandon you, no one will hire you and you will need to rely on yourself more and more, even if you don't think you can... My wife responded to the news with anger, at me! My kids pick up on her cues and act the same... My friends vanished into thin air... So, if any of this sounds familiar, it is because it is repeated all the time in circles dealing with serious illness. I find that support groups are useful and having a rare disease myself, recommend you find one like I did on Facebook... Preferably a closed group, to keep out the trolls... Hang tough... You sound like a strong person, so I am confident you'll get through this... Peace. Jeff


Posted by @trouse, May 16, 2013

Thank you for the comments! It has been a rough three years, dealing not only the fibromyalgia but c-diff disease and post IBS. I just want to be myself again!


Posted by @trouse, Jun 19, 2013

Thank you all for chating w/ me and my options. My rheumatologist thinks I should try acupuncture? Any ideas? I have looked into some possibilities, but cannot afford it, and my health insurance will not pay for it. Any sugesstions? I have been dealing w/ alot lately w/ my prior illnesses and I lost my job and my dream home due to all of this. Have no income. Waiting on reply for short term disability for my other condition.

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