Mayo Clinic Connect
Liked by jharsh
Fibromyalgia with blurred vision as the day progresses and fatigue worsens. Is that what you are referring to?
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I too experience this daily with my fibromyalgia among so many other issues.
Liked by lamerex4
Hi! I am new here- still unsure of my diagnosis(s), but Fibromyalgia seems to be one. The other most likely seronegative arthritis. Anyone have that also? i started having crippling fatigue and weakness, only on occasion & for 2-3 days at time, accompanied with terrible chills no fever, about 2 years ago. Also, some numbness and tingling in arms, feet hand and a few weird rashes. I used to take off a few days of work every other month and just sleep and rest.
it felt unlike anything else, and i became worried that I had some cancer or something. Gradually the fatigue and weakness became worse, and in the last several months i have spent most of my days on the couch or in bed. Also I have developed terrible muscle pain and weakness. Simple tasks, like getting a cup of coffee, leave me feeling as though I had been lifting weights, and most times I can barely get up a flight of stairs. In addition, I have been having terrible joint pains, that often wake me up at night, finger, wrist, elbows, shoulders & knees. Feet also. In fact I only started seeing a Rheum last summer when my right knee was buckling and I was walking with a cane. What I thought would have been a torn meniscus, turned out to all part of this big mess! After trying a few meds that did not agree with me (plaquenil put me in the hospital with a dangerous rash), I have been on Cymbalta which has seemed to quell much of the muscle aches, tingling & numbness, and recently Sulfasalazine which also seems to be helping somewhat with joint pain. I still can’t do much though…. and if there’s a day I feel a LITTLE energetic and I try some basic activities, I end up paying for it needing to rest for the next 2 days. What is everyone else’s experience??? Thanks!!! 🙂
I was diagnosed with fibro at Mayo in Rochester April 2016. I feel what you describe. It’s a tough long road that they have encouraged me to go down. Already, I am so glad and in a much better place.
I made periodic visits to my doc with complaints and they never got connected or really resolved. So frustrating because they travel so they are hard to tell s doc about when they’re gone by the time you have your appointment.
I finally was scared when I couldn’t compensate fore cognitive problems and my lack of sleep brought me down the path of frustration and depression.
For me, step 1 was to figure out how to sleep better and establish a non-negotiable routine. Step 2, cut all exercise back to 5 minutes every other day. I progressed from there. I had to get out of denial and buy into establishing a routine.
Diet is key for me as well. I am learning that my lymph system does not function well and focusing on it right now..now that I sleep well and exercise regularly.
I hope I offer some encouragement for you. You can get better. I know people with fibro that forget they have it. We need to persevere.
Liked by nanke99
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