Fibromyalgia and adhesion & fascial issues
I have fibromyalgia and have had widespread skeletal muscle pain for a number of years. This past year, I started having pain issues due to adhesive capsulitis (freezing of my shoulder and ankle), myofascial adhesions, and plantar fasciitis. Is anyone else with fibromyalgia experiencing these type of issues? I am wondering if they are related to my fibromyalgia or some other underlying problem.
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After many years of pushing myself to do more, pacing myself and not overdoing it has been a learning experience. I can’t do as much as I used to do and trying to do more, even on the days when I feel better and have more energy, never pays off. I end up hitting a wall and simply need more recovery time. I take Cymbalta. I haven’t taken a muscle relaxer but have often wondered if that would be helpful for me.
I have asthma, sleep apnea, Hashimoto’s hypothyroidism, and chronic kidney disease along with fibromyalgia and am plagued by chronic fatigue. Prior to all of this, I was very physically active, I was a competitive volleyball player and race walker. I ran the Chicago marathon at the age of 35 and was very lean.
As chronic pain and fatigue became a way of life in my late 30s, my days of being physically active ended. My BMI is now an unhealthy 36+. I have been on a low cal, gluten-restricted and dairy-free diet for the past 5 months but have only lost about 5 lbs. It is very discouraging. I am pre-diabetic and am very concerned about developing diabetes given my chronic kidney disease. I keep plowing away.
Congratulations on the lifestyle changes you have made, @kach. It isn't easy to make these kinds of changes, but as many of us have discovered a chronic illness like, Fibromyalgia, demands that we make changes if we want to feel better.
Weight loss will come along as you are faithful to healthy eating habits and moderate exercise. Try your best not to be discouraged.
I hope you post again with an update. Will you keep providing Connect with updates?
I had horrible myofascial pain for years. In my trapezoid area. If you can find a good massage therapist who really knows myofacial release, you will feel SO much better. Good Luck!
@ess77 Glad you are listening to your body it took me decades to learn to say No when I know if I do more I will hurt and mine is the next day I just hurt and can't do anything One other thing is your emotions I one time was extremely upset at my grandson and yelled at him next day the pain was excruciating Our bodies react to our emotions as well as overdoing Has anyone e found this to be true for you?
I totally agree and relate to the physio-psychological relation with Fibronyalgia, among in general inflammatory spikes in anyone with any general specialty condition that is chronic and incurable life altering. But most specialists really get concened if they have any vrains and conscience when it comes to helping their patients manage the conplex world of living eith a rare diagnosable autoimmune disease, wh8ch I also happen to have Primary Immune Deficiency Common Variable. I have little to nil social support and cant afford a therapist let alone find one taking new patients with Medicare, long before but especially since CO-VID hit. Managing the autoimmune diseases has only got even more psychologicallly overwhelming.
@lioness, @nicolekhoury39 I think you will find something to think about in the recent posting by @rwinney, in chronic pain group. She opened a discussion on centralization sensitivity. I did some research, 3+ hours online, and agree with her thinking about the conflagration of illness one person may have and how many we may develop all connected ….ck out the website she mentioned.
@nicolekhoury39 Welcome to Mayo Clinic Connect, a place to give and get support.
It doesn't sound like you are in an ideal place and I'm sorry to hear you can't find therapy with your insurance. I'm wondering if you have considered calling your local county human services. I have worked alongside the county for a long time and often there are resources but they aren't advertised. I'm wondering if you have heard of an A.R.M.S. work?
I couldn’t agree more. I continue to search with no results. I’m in Houston so there should be at least one. P.S. I did go to one, but turned out to be miserable as all he did was tell me how great he was. Anyway, good luck to all
Hi, after reading these posts you guys have given me strength to fight this. I have been suffering from this illness for the past year I am 33 years old no one seems to understand what I’m going through and it happened so fast. I’ve been pushing my body to the limit through injury that initially occurred in my lower back. I did not recover from this and took on extra tasks. Now I have muscle pain all over my body mainly lower back and hands. I’m having difficulty sleeping at night. I have not been diagnosed yet with anything however I do believe it’s mayofascial or Fibromyalgia. How do I know which one I’ve got and how do I get better? What’s the best medicine to take throughout the day and for sleep. Thank you guys.
i’m prescribed Lyrica (generic pragabelin ) for fibromyalgia- and it works! symptoms are many and you could have facial pain – ask your pain doctor to prescribe and adjust strength as needed. i take 100 mg 3x a day. i have chronic pain and i still work F/T at 79!