Fibromyalgia

Posted by Dorothy57 @dorothy57, Nov 13, 2011

Does anyone
have this and if so do you experiences days of having major headaches, muscle aches, just flat down in bed. still working full time, but very hard. I was sick for 4 out of seven days las week!

Liked by Anonymous

You have just described my last week. This is truly a crappy disease.

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I don’t think anyone but someone else with this disease can identify with the pain and effects of what it robs you of life. I wish every doctor I have seen for the last 14 years could experience it for just one day because I wouldn’t wish it for anyone for more than that.

Liked by GalileoGzz

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i have been getting more headaches lately and not sure what i am doing that is different. I have body aches most all the time. I am also working full time and taking care of two small children ages 5 and 2. I can relate that it is very hard to do this!

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@jsorum

i have been getting more headaches lately and not sure what i am doing that is different. I have body aches most all the time. I am also working full time and taking care of two small children ages 5 and 2. I can relate that it is very hard to do this!

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I feel for you, especially having 2 young children! I will keep praying for everyone even though I might not know your names. I have ended up flat in bed for 2 weekends in a row, with the body aches and headaches. Almost had my husband take me to the hospital it was so bad. I am still trying to figure out why after a hernia surgery. I have done some reading about the llionguinal nerve, which they said they used extreme caution to avoid in my surgery papers. Been in pain ever since and getting worse!! Any feedback anyone out there? Everyone have a good evening!!

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@lindal

I don’t think anyone but someone else with this disease can identify with the pain and effects of what it robs you of life. I wish every doctor I have seen for the last 14 years could experience it for just one day because I wouldn’t wish it for anyone for more than that.

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I agree…everybody, including my husband, has no clue to the pain that I feel. I have been working full time and having to take care of my two grandchildren all by myself.. He won’t help me. My grandchildren are 4 and 6.

Liked by janasr

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@lindal

I don’t think anyone but someone else with this disease can identify with the pain and effects of what it robs you of life. I wish every doctor I have seen for the last 14 years could experience it for just one day because I wouldn’t wish it for anyone for more than that.

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You need to have some help before you really get to the point of not being able to do for yourself. I understand how you feel at times, we have a mentally impaired son who is 32 living with us also and sometimes it’s like having a little child. Remember to do for yourself!!! May God give you a good day!!

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I saw a neurologist on the Charlie Rose show. He said that chronic pain becomes a disease in and of itself. Drugs like Lyrica can help lower the brain’s response to pain. I’m trying to convince my Dr. to prescribe it. Without Lyrica or something like it, your pain will not improve, and will most likely get worse – mine certainly has.

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To Dorothy, I was diagnosed with fm about 6 months ago and it is increasingly becoming more painful, headaches at night pain mostly dur night. Seems cold weather mks it worse. I fell for you, I hvent been told what medication to take for it for me warm epsom salt baths help some. I also experience not being able to get out of bed, but actually moving around is better

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@mrsartavia

To Dorothy, I was diagnosed with fm about 6 months ago and it is increasingly becoming more painful, headaches at night pain mostly dur night. Seems cold weather mks it worse. I fell for you, I hvent been told what medication to take for it for me warm epsom salt baths help some. I also experience not being able to get out of bed, but actually moving around is better

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Thanks, I will try that Epsom salt bath. I do take a lot of hot showers, but that only lasts for a while to take away some of the pain. Did yours start after a surgery? Today it’s cold in Michigan and I’m having a painful day! It’s bad when the people at church can recognize I’m in pain. I’m fortunate to have so many people in my life praying!! Time to get the heat packs going, thanks for the reply!! Will be praying or all!!

Liked by janasr

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@mrsartavia

To Dorothy, I was diagnosed with fm about 6 months ago and it is increasingly becoming more painful, headaches at night pain mostly dur night. Seems cold weather mks it worse. I fell for you, I hvent been told what medication to take for it for me warm epsom salt baths help some. I also experience not being able to get out of bed, but actually moving around is better

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I hope you feel better,I know how painful it can be. I suffered from what they call IBS for many yrs, then had a gall bladder operation and ever since then all my problems got worse and they sd I have fibromyalgia. Hope the hot baths help I will pray for you.

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@mrsartavia

To Dorothy, I was diagnosed with fm about 6 months ago and it is increasingly becoming more painful, headaches at night pain mostly dur night. Seems cold weather mks it worse. I fell for you, I hvent been told what medication to take for it for me warm epsom salt baths help some. I also experience not being able to get out of bed, but actually moving around is better

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Have you tried using a hot tub? I do and get about an hour to 2 hours of relief from pain 🙂 I live in Michigan also
How long have you been diagnosed??

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I know that feeling!! 🙁 I have a 13 month old that just started walking and getting into trouble..I’m 29 but I move like I’m 99…it’s miserable!!!

Liked by janasr, BarbA202

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@fibrosufferer

I know that feeling!! 🙁 I have a 13 month old that just started walking and getting into trouble..I’m 29 but I move like I’m 99…it’s miserable!!!

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Did you have a surgery or did it just come out of no where? It’s horrible you are feeling that way!! Take care of yourself and have a wonderful Thanksgiving!!!

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@phinze

You have just described my last week. This is truly a crappy disease.

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I agree with you totally! Tried neurontin which very suprisingly eliminated like 90% of my aches and pains..however the side effects were to much for me to handle, felt like i had the flu…dizzy..yuck. Stopped taking sat. Thinking about taking tramadol, anyone take that for the lovely irritations of this syndrome?

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@phinze

You have just described my last week. This is truly a crappy disease.

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Couldn’t take that at one time seemed way to strong, made me feel really out of it! We just came home from Florida after a vacation, what a difference compared to Michigan in how my aches and pains. Hurting so much more here!! Doing the heat a lot and hot showers since I have come home, can’t really get by without my afternoon meds like I did in Florida. d
Does anyone have any feedback on living in Florida full-time? We are thinking on living there in the future if possible! Take care Dmdo glass, hope you find some kind of answer!! If you do please share!!

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