Brief history: suffering from joint and muscle pain, swelling, hair loss, tingling sensation is hands and feet, horrible pain in knees, ankles and elbows, burning pain in shoulders and legs. Been to a local rheumatologist after having a low positive ana. Started me on predisnone and I felt great. He ruled it as inflamatory. Almost 3 years later, still no real diagnosis. Went to Penn Presbyterian University Hospital for a second opinion. The pa said I have fibro and not enough evidence to prove inflammatory. She made me stop the arava I was on and take amitriptlyne. The arava must have been helping more than I realized. Coming off it, I am in horrible pain. Went back to the second rheumotologist and she said give it more time and increased the amitriptlyne. 2 weeks later I am still in extreme pain, exhausted and confused. I did start aqua therapy which helps me feel good in the pool. I don’t know if I should get a third opinion. The second rheumy said I could have ulcerative colitis induced inflammatory pain but my uc is in remission since 2012. I have had a low grade fever off and on for the past month. She said I could have had the flu. I feel like a hamster running around the wheel and getting no where. Sorry for the long post, I am just scared, confused and tired of not feeling good.
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