I havent been on here for quiet sometime. Is their anything new about this illness that could help me to understand it better. I am getting ready to make my second visit to Mayo clinic. I will be calling to make a appointment soon. I am not any different than I was a year ago and all I ever do is go to my docter in Evansville Indiana and she does blood work every 3 months. She says that my platelets are still to high and my red and white blood cells are way to low I dont have any energy. Anyone have any new information that they would want to share with me.