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Esophageal Cancer Support Monthly Meeting on Fridays at 12:30 ET

Posted by Colleen Young, Connect Director @colleenyoung, Jun 17, 2021

Esophageal Cancer Support, Inc. (ECSI) hosts monthly virtual meetings on Fridays at 12:30 Eastern time. The meetings are open to all affected by esophageal cancer, including caregivers, at any phase of treatment or recovery.

See the great line up of speakers to come:
– Jun 18, 2021 Michael Rutenberg, M.D., Ph.D., Proton Therapy
– Jul 16, 2021 Gretchen L. Gonzalez, DOM, AP, Acupuncture
– Aug 20, 2021 Michael B. Wallace, M.D., M.P.H., Role of AI in early GI cancer detection
– Sep 17, 2021 Jason Starr, D.O., Hematology Oncology
– Oct 15, 2021 Sunil Krishnan, M.B.B.S., M.D., Medical Oncology

Register here: https://zoom.us/meeting/register/tJUudu6hrz0sHtPzBiO11Lw-iUiimZ862oOm

Interested in more discussions like this? Go to the Esophageal Cancer Support Group.

lizzier | @lizzier | Jun 21, 2021

Hi Colleen: This is so interesting. I signed up for the Polymyalgia Rheumatica/Giant Cell Arteritis site which is my diagnosis, then I saw the one on Dementia and my husband is now beginning that journey. Just as I was about to close this down today, I saw the one on Esophageal Cancer, and my dear son on law had surgery for that today. It went well, but it is not an easy diagnosis to deal with. He's a really fine man, and it sometimes seems like too much is going on. My son is having surgery on Thursday. These are young people who eat right and exercise, and have busy interesting lives with good jobs, and nice families. I can accept it with myself and my husband because our bodies have been around for a while, but the young ones can get to me. Be well and have a good evening. Elizabeth

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1 reply
Moderator
Colleen Young, Connect Director | @colleenyoung | Jun 21, 2021
In reply to @lizzier "Hi Colleen: This is so interesting. I signed up for the Polymyalgia Rheumatica/Giant Cell Arteritis site..." + (show)
@lizzier

Hi Colleen: This is so interesting. I signed up for the Polymyalgia Rheumatica/Giant Cell Arteritis site which is my diagnosis, then I saw the one on Dementia and my husband is now beginning that journey. Just as I was about to close this down today, I saw the one on Esophageal Cancer, and my dear son on law had surgery for that today. It went well, but it is not an easy diagnosis to deal with. He's a really fine man, and it sometimes seems like too much is going on. My son is having surgery on Thursday. These are young people who eat right and exercise, and have busy interesting lives with good jobs, and nice families. I can accept it with myself and my husband because our bodies have been around for a while, but the young ones can get to me. Be well and have a good evening. Elizabeth

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Hi Elizabeth, members have often shared that they join Mayo Clinic Connect for one reason or diagnosis and then find over time that they are several groups relevant to them and their family and friends. You can see the complete Group Directory here: https://connect.mayoclinic.org/groups/

Esophageal cancer is a challenging diagnosis to be sure I hope your son-in-law might consider joining the discussions in the Esophageal Cancer group and/or joining the monthly support group meetings.

All the best for your son’s surgery on Thursday too. What is his surgery?

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1 reply
survivorsuz | @survivorsuz | Jun 29, 2021
In reply to @colleenyoung "Hi Elizabeth, members have often shared that they join Mayo Clinic Connect for one reason or..." + (show)
@colleenyoung

Hi Elizabeth, members have often shared that they join Mayo Clinic Connect for one reason or diagnosis and then find over time that they are several groups relevant to them and their family and friends. You can see the complete Group Directory here: https://connect.mayoclinic.org/groups/

Esophageal cancer is a challenging diagnosis to be sure I hope your son-in-law might consider joining the discussions in the Esophageal Cancer group and/or joining the monthly support group meetings.

All the best for your son’s surgery on Thursday too. What is his surgery?

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I suggest short visits with anyone that is recovering from esophagectomy. It’s extremely tiring and need a lot of time dedicated to either tube feedings or when able to actually eat, they must eat VERY slowly, chew excessively and frequent small meals. Visits over an hour interrupt the nutrition schedules.

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1 reply
Moderator
Colleen Young, Connect Director | @colleenyoung | Jul 4, 2021
In reply to @survivorsuz "I suggest short visits with anyone that is recovering from esophagectomy. It’s extremely tiring and need..." + (show)
@survivorsuz

I suggest short visits with anyone that is recovering from esophagectomy. It’s extremely tiring and need a lot of time dedicated to either tube feedings or when able to actually eat, they must eat VERY slowly, chew excessively and frequent small meals. Visits over an hour interrupt the nutrition schedules.

Jump to this post

That is such a valuable tip, @survivorsuz. Visitors often lose track of time and don't realize how exhausting visits can be, not to mention how much of your day is dedicated to "nutrition acquisition."

What strategies have you developed to signal or tell people that the visit is over?

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survivorsuz | @survivorsuz | Jul 5, 2021

I’m pretty direct with my signal such as “it was so nice of you to take the time to spend with me today. I have to cut our visit short now to get the proper rest and medicines required for continued healing”.
Even more direct was a little note by our doorbell ‘visits of 20 minutes or less are greatly appreciated’.
Hope this helps.

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