Epiretinal membrane/severe vision loss after surgery

Posted by lmno20 @lmno20, Sep 17, 2020

Hi. Has anyone experienced an epiretinal membrane (ERM) with near total vision loss following eye surgery? Have any treatments helped and/or did the membrane eventually go away? I have had an ERM for almost 3 years that can't be removed because there are no edges to grasp. I haven't lost hope but feel lost since this occurence is so rare I can't get answers from my doctor. Thanks for any insight!

Hi @lmno20, welcome to Mayo Clinic Connect. I was tempted to move your post to this discussion
– Post detached retina surgery followed with cataracts and eye scarring https://connect.mayoclinic.org/discussion/post-detached-retina-surgery-followed-with-cataracts-and-eye-scarring/

In this discussion, @bjackie @imallears @veteran1950 @rwinney and @dsh33782 are discussing similar and related issues.

Lmno, in your case is the epiretinal membrane related to normal age related changes inside the eye or to a condition such as diabetes, retinal tears, blockage of blood vessel, inflammation or prior eye surgery?

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I have had 2 retinal tears…multiple surgeries. And every test possible. I’m still legally blind..any suggestions. Over 12 doctors and specialists…

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@molly611

I have had 2 retinal tears…multiple surgeries. And every test possible. I’m still legally blind..any suggestions. Over 12 doctors and specialists…

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Hi Molly, welcome to Mayo Clinic Connect. I’d like to invite fellow members @bjackie @imallears @veteran1950 and @dsh3378 into this discussion.

Molly can you help me understand your situation more? Have you had retinal tears in both eyes? Can you tell us more?

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Yes, both eyes. Emergency surgery in each. Still legally blind after membrane peels. Steroid inserts you name it I’ve had it.

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I wish I had some encouraging news to share with you, unfortunately, I don't.

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Does anyone think Dr. lezzi at Mayo could help?

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I'm so sorry about your visioni! I would try Dr. Boldt at U of Iowa. He is an outstanding retinal surgeon who operated on my retinal detachment. I still have 20/20 corrected vision in that eye. They are ranked 5th in the nation for clinical eye care. I did not have a good experience with Dr. Ianezzi at Mayo.

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@pacer3702

I'm so sorry about your visioni! I would try Dr. Boldt at U of Iowa. He is an outstanding retinal surgeon who operated on my retinal detachment. I still have 20/20 corrected vision in that eye. They are ranked 5th in the nation for clinical eye care. I did not have a good experience with Dr. Ianezzi at Mayo.

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Thank you….I will reach out to U of I.

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@molly611

Does anyone think Dr. lezzi at Mayo could help?

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Molly, Mayo Clinic eye experts provide comprehensive care for people who seek answers about conditions and diseases of their eyes. Each year doctors in the Mayo Clinic Department of Ophthalmology help nearly 80,000 people who need healing.

I encourage you to call the appointment office to ask about getting a second opinion at Mayo. Here's more information on how: http://mayocl.in/1mtmR63

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