My stepdaughter has epilepsy with startle myaclonis. Her leg jerks and she falls down. BANG. She has severly injured herself several times, is no longer allowed to drive, currenly has a broken ankle, walks around hre house on her knees, has gained many pounds due to inactivity, can barely care for her 2 year old and 6 year old daughter and is severly depressed, which at this time is a sign of mental health. Does anybody have this condition or know of someone who does. She has been under treatment for over 5 years, and nothing helps for very long. Her current insurance says they are trying to get a Mayo appointment in Arizona, but we have been waiting months for that. Would love to share experiences with anyone. Thank you.