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roxie43

Electroconvulsive Therapy for Treatment Resistant Depression

Posted by @roxie43 in Mental Health, Dec 3, 2011

Dear Readers,
How are you all? I am hoping that you are doing everything within your power to recover from whatever ails you because we all deserve to be at peace, live our life to the fullest and even get the best treatment possible for our illnesses. I am a woman in my 40's with a chronic history of depression, anxiety, PTSD and recently became agoraphobic because I only felt safe at home.
I have tried so many medications, most did not even touch my depression, but one did (Remeron) and of course I gained over 30 pounds in 1 year so my medical doctor was not pleased. Then, a cruel person, or shall I say a person with her own issues became emotionally abusive with me and she stirred up so many unresolved feelings that I became very ill to the point of incapacitation.
I was really scared, desperate and almost gave up but my treatment team would not give up on me. The discussion of ECT came up and I thought that I was going to throw up. I have heard some horror stories about ECT so ambivalence and mistrust was my initial reaction. Then, I agreed to do it and after my physical exam cleared me for the procedures I did it. Now, I am a huge chicken when it come to dentist and being put to sleep. My first ECT visit......well prior to going, I genuinely thought that I was going to have a heart attack. However, I wanted to get better so I did it! This big chicken did it but before I did my doctor from Yale, Dr. Ostroff and his team explained everything to me. There are 2 ways to do ECT. One is bilateral where both sides of the brain receive the treatment and then there is unilateral which is only on the right side of the brain where there is minimal cognitive damage, less side effects and virtually no memory loss.....for me anyway. My only complaint would have to be headaches but this is questionable because I suffer from migraines and need a darn root canal.
Anyway, once you arrive for your session this is what happens;
1) You go to the ECT suite
2) Take off your shoes
3) Lay in bed
4) Vitals are monitered
5) If***heart rate is too fast due to nerves or other issues one is pre-medicated to control heart rate.
6) IV is put in as this is how you are put to sleep
7) You are then transferred to the small ECT room.
8) You are made comfortable with a small pillow
9) You are then asked are you ready?
10) You are then told..ok you are about to get very sleepy and have a funny taste in your mouth
11) You wake up, did not feel a thing, and feel sleepy
12) You are back in the ECT suite
13) Your vitals are being monitered again
14) You are given something to drink if you asked~no food or drinks after midnight the night before.
15) You are told to get up from the bed and sit in a small seating area where you put your shoes on.
16) After being observed for a few minutes, you are taken to the waiting area where someone should be waiting for you because you are not allowed to drive the day of the procedure. This is a wise thing to do because after the induced seizure, medications, and brief nap one awakes a little woozy and tired.
17) You leave with your next appointment in hand, go home, rest, eat, drink and can take ibuprofen a couple of hours after the treatment.
18) FYI**** After the first session, due to having your first seizure and muscle relaxants one can be a little sore but this is only after the first session.
It's not the baberic treatment many report. I am not forced to have the procedures done and after 8 sessions I am no longer living in darkness. Yesterday, my memory was tested and I scored perfectly. The unilateral approach is the best approach for me because I want to return to work soon and need to be able to continue remembering things and focus on my work.
I have a wonderful treatment team. However, I won't lie. I still get scared because no one really knows how the procedure really works but there is enough research that demonstrates that it does work. There is also word of mouth. I am proof that ECT works and although I don't enjoy the feeling of being put to sleep, I know it is done safely and I know that slowly but surely I am recovering.
Recovery is our ultimate goal! I hope this was helpful. I understand not everyone has had my experience with this procedure but I must say people are tired of barely living because of their mental ilnesses and everytime I go, 3 x's per week, there are 12-20 individuals waiting for their ECT treatments. If nothing else is helping you, please do not give up. If the biggest chicken on this planet can do it and reports an improved mood, no suicidal ideations, am cooking again and can laugh once again, it is at least worth discussing.
Best of luck to all & god bless you all during this holiday season and beyond 🙂

Tags: mental health, healthy living, womens health, sleep problems, Other, work place violence, mens health, Cancer, pregnancy, Infectious Disease, sports medicine, recovery, eye conditions, kidney conditions, lung conditions, Scholarship contest, transplants, Skin Conditions, preventive medicine, espanol

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edeleo

Posted by @edeleo, Dec 4, 2011

I enjoyed reading you your story. I admire that you chose unilateral ECT so that you can return to work. I too am an ECT success story. My experience of the procedure was virtually identical to what you describe. I want to clear up misconceptions about ECT, so anyone who reads this and has questions, please feel free to contact me.

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roxie43

Posted by @roxie43, Dec 4, 2011

Hi,
Thank you for sharing as well. I remember when I first heard about ECT at work and decided to look it up online. Wow, some of the information is very dated and scary. To date, if you go on youtube there are some videos that will make a person think twice about the treatment and it is a real shame because it really works, saves lives, offers hope and restores a persons ability to continue being a productive citizen. I went back to school later in life to earn a master's degree and have worked in psychiatry for almost 20 years so when my own illness became unbearable I had to make a choice "fight or settle". I decided to fight because I deserve to live a good life. We all deserve to live a good life. You are so right about misconceptions and I believe a lot of it stems from fear. I am happy to hear that ECT also helped you. It can help others as well..........

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edeleo

Posted by @edeleo, Dec 5, 2011

I agree. Some of the videos online seem to be meant more for some kind of sick entertainment than presenting the facts. I am currently working on a documentary about ECT for my college journalism coursework. Especially because you work in psychiatry, I would be eager to interview you about your experiences. Would you be interested? I see that you are from Hamden, CT. I will be in Poughkeepsie, NY until late December - not too far from you. Please do let me know if you are interested, and I can give you more details. My email is edeleo@prescott.edu.

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roxie43

Posted by @roxie43, Dec 5, 2011

sure. I will email you

roxie43

Posted by @roxie43, Dec 12, 2011

Hello,
I have decided to work with Edeleo for a documentary that she will be doing on ECT. I am going to be interviewed soon. I decided to participate because I strongly believe, that in order to give others hope, one has to be open about treatments that saves lives. I am pleased that so many people have read my post in such a short time and I hope that my story will be interpreted positively and encourage readers to explore all the possible forms of treatment with their providers. In addition, the pic that is posted is of me during a time that I was very happy. I need to take new pictures because I am getting there, happiness, but if I post recent ones (earlier this year) I might scare you.
Edeleo, thanks for contacting me and sharing your experience. You appear to be a lovely young lady who also wants to give back and inspire others......

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roxie43

Posted by @roxie43, Dec 19, 2011

Dear Readers, feel free to ask me questions about my experience with ECT, Talk Therapy & Medication Management.
Best,

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mk1

Posted by @mk1, Dec 21, 2011

roxie43

Posted by @roxie43, Feb 14, 2012

New post on ECT....
It's excellent. Check it out.....

roxie43

Posted by @roxie43, Jan 26, 2012

Still feeling good after my experience with ECT. Returning to work soon and will admit concerns because work is where the cruel person/s that hurt me are but I guess that I need to stay focused on work, my recovery and not own other peoples issues. Misery loves company! So true but I will never allow another health care hypocrit to hurt me again.
Please if you are being bullied follow the chain of command and if what you report is swept under the rug contact legislatures, ADA enforcers, community providers etc. I was the victim of bullying and discrimination in the workplace and it caused my first episode of incapacitation. I am thankful to all those that cared about me and helped me recover including ECT.

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aspen47

Posted by @aspen47, Jan 26, 2012

I too enjoyed reading your story. I have the same symptoms you had before your ECT, including not wanting to leave the house. I haven't been able to work for 7 months now. I was just released from the hospital after two ECTs and am supposed to go back tomorrow for a third one and am really struggling with that. After the first one, I felt on top of the world, even in the hospital, therefore, I was REALLY looking forward to the second one. But it didn't do the same as the first one...I came out of it crying for two days, feeling more depressed than I ever have in my life, to the point by three sons and granddaughter felt I needed someone with me even two days after....I'm questioning going again tomorrow, what if it makes me even MORE depressed again? Did you experience anything like this, Roxie? Oh, and the headache...it's horrible! I would appreciate any advice you have. Thank you.

roxie43

Posted by @roxie43, Jan 26, 2012

Hi,
Thank you for sharing. From what I was told is that ECT usually requires 12 sessions and the monthly maintenance. In my opinion, 2 sessions might not be enough. Also, everyone responds differently but I still think 2 sessions is not enough. If you can tolerate a few more sessions you just may see a difference. As for the headaches, I totally feel your pain because they are horrible. I was given a muscle relaxant called Soma which eases the headache. I still prefer to be able to function again. You might also want to discuss anti-depressants in combination like I did. I would advise you to keep your appointment tomorrow. I was not cured but I feel so much better. I am able to leave the house and do things that for over two months were challenging.
ECT is not instant and the required sessions are important but like I stated everyone can complete every session recommended.
I would like to know how you feel when you've had at least a few more sessions with an anti-depressant.
Best of luck, have faith that brighter days are ahead and please keep in touch.
Big hug Rox....

aspen47

Posted by @aspen47, Jan 27, 2012

Thank you for writing back so quickly, Roxie. I went to see my psychologist today and she felt I should see my psychiatrist tomorrow and put the ECT on hold. I'm truly afraid of another one sending me into a suicidal depression, and that is just not "me". Unfortunately, there are no guarantees with ECT, which way it will go and it has made me a nervous wreck. I will see the doctor tomorrow and give myself a break and maybe reconsider next week. Part of me is saying just to taper off everything and see what kind of person I really am without meds or anything. I was given Vistaril for anxiety today and hopefully that will calm down my stomach, nerves and everything else I'm feeling that is anxiety related..

roxie43

Posted by @roxie43, Mar 8, 2012

Hi Aspen,
I have not heard from you in a while. How are you my friend? I hope you are hanging in there and believing in yourself that RECOVERY is possible.
Sincerely,
Rox

aspen47

Posted by @aspen47, Mar 9, 2012

Hi Roxie, Thank you for writing today. I am doing ok. My doctor refused to do any more ECT's because of the "euphoric" reaction to the first ECT. I guess he didn't know about that reaction until after the second one. I was told it was not a "normal " reaction, so no more would be done. I'd love to know your thoughts on this. Other than that, I'm just getting thru each day, mostly laying on the couch, no motivation to do much, even to eat. So...back to where things were, memory is still a little sketchy but it's just bothersome more than anything. How are you doing? Thanks again for writing! Diana

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roxie43

Posted by @roxie43, Mar 9, 2012

Hi
So, you only had 2 sessions? Could you revisit this topic with your doctor?? I feel bad that you are just laying around and not eating. You have to do something my dear. You deserve to be living not just existing.
See if your doctor will approve a single unilateral ECT SESSION per week. Do you own a therapy lamp? The bright lamps are helpful too. How about yoga, a social club, or adding abilify to your regimen?
We have to do something that will improve the quality of your life. Just keep in mind that recovery is possible and that you are going to get better.
I was just like you and ECT saved my life. Yes, I had side effects but it was worth it all. Does your doctor know how you're feeling? Please do whatever it takes to feel better and I'm here if you need to brain storm or chat.
Sincerely,
Rox...big hug Diane

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aspen47

Posted by @aspen47, Mar 12, 2012

Hey Roxie! How is your day? I've gotten up and moved around a little today -the sun has been shining in Montana and it's been warmer = more motivation! Roxie, my doctor refuses to do anymore than those 2 ECT treatments. I would REALLY like to know what he's afraid of regarding his remark "it's highly unusual to have a euphoric reaction after the 1st one". Evidently he didn't KNOW about that reaction until AFTER the 2nd one because he had split! He does know how I'm feeling and my session with him last week, he was "confrontational" with me again. He actually made me feel totally hopeless by saying they can't help me and asking me what do you want us to do for you over and over. I came home and pretty much felt "hopeless", not in a good way. I told his associate, my therapist, you don't make people who struggle with hopeless feelings already feel MORE hopeless! So, long story short, he refuses to do anymore ECT's....

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roxie43

Posted by @roxie43, Mar 13, 2012

OMG how inappropriate! No treater should talk to a consumer that way. They work for you, you are the reason they have jobs. That really irritates me. I'm so sorry you were even exposed to that.
I'm happy to hear that you enjoyed the sun. The sun definitely brightens my mood. Listen dear you need to either request an all treaters meeting with all involved in your care and be honest that your current treatment is ineffective and you're not going to tolerate it. You should be recovering not feeling the same or worse.
You also have the right to request another treater if the person is being unprofessional or you can ask to be referred elsewhere.
Let me know if you need help doing these things. I know the law and even though I'm. In CT I will advocate for you via phone, emails or letters. No treater show cross the boundary and be unethical nor abusive.
You stand strong as I know you are. You are going to recover I have faith in you but you have to demand respect and good treatment.
you're in my prayers ...
Rox

roxie43

Posted by @roxie43, Mar 13, 2012

Hoping you're ok

roxie43

Posted by @roxie43, Mar 15, 2012

Well the truth is ECT is not for everyone but I'm curious as to what other options are being offered to you.
Talk therapy is helpful and medicine can also be helpful. If these treatments are not enough you have to get creative. I love tanning beds myself but you have to be cautious especially because there is a list of meds that advice to refrain from to much sun or artificial light.
Simply thinking aloud Aspen trying to think of how you can get healthier. Don't lose hope ...you have to believe brighter days are ahead!
Rox

roxie43

Posted by @roxie43, Mar 12, 2012

Absolutely a beautiful day. Nothing is perfect but it feels good to anticipate warmer weather ..it does wonders for the mood.

aspen47

Posted by @aspen47, Jan 20, 2013

Roxie....after a year of searching, I have found the answer as to why my psychiatrist didn't want to do more ECT's because of the "euphoric reaction" I had.:

Mechanism of action

The aim of ECT is to induce a therapeutic clonic seizure (a seizure where the person loses consciousness and has convulsions) lasting for at least 15 seconds. Although a large amount of research has been carried out, the exact mechanism of action of ECT remains elusive. ECT doctors claim it may "jumpstart the brain", helping boost neurotransmission, while others like Peter Breggin, claim it causes the "euphoric" effects similar to the effects found in "closed head injury" or people with fresh traumatic brain injury. The main reasons for this are that the human brain cannot be studied directly before and after ECT and therefore scientists rely on animal models of depression and ECT, with major limitations. While animal models are acknowledged to model merely aspects of depressive illness, human and animal brains are very similar at a molecular level, enabling detailed study of the molecular mechanisms involved in ECT.

There is a vast literature on the effects of Electroconvulsive Shock (ECS) in animals. In animal models of depression, particularly "learned helplessness" and "social defeat", there is evidence of pruning of normally dense synaptic connections in the hippocampus, a richly connected area deep in the temporal lobe which is vital in controlling both mood and memory.

aspen47

Posted by @aspen47, Jan 20, 2013

p.s. I am close to tears...I KNEW something was wrong.

roxie43

Posted by @roxie43, May 22, 2013

How are you Aspen? I hope you are feeling better. Have faith in yourself that you are strong enough to work hard on your recovery.
Hugs,
Rox

ckat

Posted by @ckat, Aug 25, 2013

My husband is to the point where ECT is our final hope. He has been on every drug imaginable for TRD and at age 55 he is without hope. The one thing that concerns him the most at this time is his anxiety which goes hand in hand with his depression. Did you find any relief for that with ECT? We are resigned to the fact that he will have to continue maintenance treatment and an a drug regime. But the we just hope that some of his anxiety disorder will have some relief. Thank you for any words of wisdom you can share.

roxie43

Posted by @roxie43, Mar 18, 2012

So sorry ECT did not help you and freighted you. I hoping that meds that work were found and that you're functioning better. As with treatments for everything there is no guaranteed positive outcome.
I rarely get the incapacitating headaches ....thank God! But not being able to return to social work is actually depressing.
Please stay in contact and let me know how you're doings
Stay strong!
Rox

drashok

Posted by @drashok, Jan 31, 2012

Hi edelo,
How far has your documentary progressed?

roxie43

Posted by @roxie43, Jan 31, 2012

Postponed. Additional supervision was needed but when she's ready we will connect.

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edeleo

Posted by @edeleo, Feb 3, 2012

It is just getting started. I am looking for interviewees. Would you be interested in participating?

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roxie43

Posted by @roxie43, Feb 6, 2012

Count me in. Awareness and genuine experiences will empower others to continue exploring ways to live happier and healthier lives. Glad you're starting.

drashok likes this
roxie43

Posted by @roxie43, Mar 1, 2012

Hi Edeleo,
How are you and your studies going? I enjoyed the project and I hope you're getting a good response
. I'm still doing a lot of writing and really want to publish my story. I also want to help a local professor with implementing an anti-bullying law in the workplace.
A woman who was being bullied at work committed suicide according to this professor which I find discusting but am fully aware of the serious social issue of bullying and its not simply prevalent in schools
Hope all is wonderful
rox

roxie43

Posted by @roxie43, Mar 20, 2012

How are you? Hope your studies are going well.
So proud of you!
Rox

edeleo

Posted by @edeleo, Mar 20, 2012

Everything is going really well. I'll be spending the summer in New York interning with MTV. I still need to take a special course on interviewing ethics before I can officially interview you. This means I may not be able to interview you until next year. Just curious, are you still looking to move out west or will you stay where you are? I hope you are still doing well -- it sounds like you are! 🙂

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roxie43

Posted by @roxie43, Mar 20, 2012

I am still planning to move out West. Amazing. I was recently interviewed via phone twice and the last if being considered I will fly out. I think that getting away from a place with so many bad memories will do me some good.
Take care

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roxie43

Posted by @roxie43, Mar 21, 2012

MTV !`~~ GO GIRL.....PROUD OF YOU!

drashok

Posted by @drashok, Jan 31, 2012

I see that by sharing you are being a good support.
I had my bout of depression when I was in medical school. Then a brief episode of hypomania. For 30 years I am leaving with depression. No medicine works (yes, the anxiety is out). I am incapacitated at home. My medical practice is on hold.
Psychiatrist have suggested I take ECT. ECTs haven't helped in the past. My ex reacted strongly pleading me not to take ECTs for she as care provider has seen how futile they have been. I would not mind taking ECTs or any other thing on earth or beyond, but the funny thing is I am so inactive that I am not able to force myself to go to the doctor.
That's the present state. I am typing these lines at 3.30 am from India.
Perhaps some sharing of suggestions might give a breakthrough and bounce me back to good health.

roxie43

Posted by @roxie43, Jan 31, 2012

Hi,
I think if we develop a community of support people feel more hopeful because they realize they are not alone. I know depression can make a person feel so alone at time like no one else in the world can possibly understand but we are not alone. I am sorry ECT did not work for you in the past. You must push yourself, however, and think of other ways you can move about. How about yoga, meditation, adding abilify or some other anti-depressant? It does not matter how old one is as we all deserve to live a meaningful life until the very end. Also, try not to focus on work or other stressful things.
I wish I were nearby to push you, motivate you and encourage you to force yourself to act so you can recover. Look at all that you have accomplished in your life. You have a lot to be proud of. You have to believe in that person again because underneath all the pain and despair still lies a wonderful person.
May your higher power guide you and shine lots of sunny days your way.
Rox

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drashok

Posted by @drashok, Feb 2, 2012

Any idea if Ketamine helps in the treatment of depressive disorder?

roxie43

Posted by @roxie43, Feb 6, 2012

My job is affiliated with Yale and they conducted a study on K and found it to be promissing. It supposedly takes effect within 8-10 hours versus 4-6 weeks. Special K is a street drug, an anesthetic and researchers are in hopes that a safer version will be approved to treat depression. It is said to be magical in lab rats. Sounds good to me. If you know of an FDA approved version already go for it.
Best,

roxie43

Posted by @roxie43, Mar 11, 2012

How are you doctor? I hope you are feeling better.
Take care,
Rox

roxie43

Posted by @roxie43, Feb 12, 2012

Thinking about maintenance treatments..
May need more sessions or some type of pampering ....
Rough couple of days but could be hormones ....

roxie43

Posted by @roxie43, Mar 16, 2012

Hormones! Sometimes it can be challenging to decipher between all that takes place in a middle aged woman's body....
Is there a class I can take?
Being jovial .....a good sign. 🙂

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roxie43

Posted by @roxie43, Feb 19, 2012

It's my birthday!""""""
I am thankful that ECT is and was available to me because it saved my life and I am privileged to celebrate another bday.
God bless

roxie43

Posted by @roxie43, Feb 22, 2012

I'm so proud of all the wonderful people that have written on my 4 posts. I decided to begin telling my story after a humiliating and discriminatory experience that was traumatizing. My employer was ashamed of me not because of my work ethic but because I was proud of who I am. They defined me as an illness and became blinded and could not see the caring, hard working human.
Don't allow anyone to define you and your capabilities.
this world can be cruel!" Inform yourselves and never allow ignorance to define you!

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marylynette

Posted by @marylynette, Feb 22, 2012

I am proud of you too, It takes great courage for those of us with mental illness to open up and speak of our experiences and difficulties. I am currently dealing with both a severe digestive disorder and treatment resistant depression and am finding it hard to find doctors who listen to me about the physical problems because of the mental illness. My Psychiatrist, a wonderful woman, says that this is quite common for those of us who suffer from mental illness. Keep up the good work!

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roxie43

Posted by @roxie43, Feb 22, 2012

Hi,
Thank you for the support. I totally agree that some doctors have a hard time separating physical health issues vs psychological
And, if you have anxiety forget it you can be having a heart attack and are told its the anxiety. Just make sure you know your body and assert yourself around any concerns.
Take good care .......Rox

roxie43

Posted by @roxie43, Feb 26, 2012

Treatment resistance in depression is horrible but I always functioned regardless until last year
When someone is informed of another's challenges two thins can happen; one is supported or victimized
The victimization opened up a can of darkness like never before and I felt so unsafe and vulnerable that I had to leave the environment and began ECT. For me, it was a way to give myself hope and some much needed relief from how ugly I was made to feel deep down to the core. When someone with a little power laughs in your face and tells you "I'm not your therapist' but the conversation was about work and community safety one is left feeling totally degraded and demoralized.
the best and safest thing I could do is take a break.
I'm proud that I did not slap her in the face as she deserved and I allowed God to handle her. I'm also not violent in anyway but she was really trying to have me behave out of character
Don't ever allow anyone to affect your recovery nor belittle you
I tolerated this for months before I finally told my doctor there was a safety concern. I am so glad I did because although I still have challenges I am able to laugh and do things again that I thought I would never do because I just wanted to die.
Give ECT some serious thought if medications are not helpful but never give up.....you're worth living!
God Bless

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roxie43

Posted by @roxie43, Mar 7, 2012

How are you doing Marylynette? Did you finally find someone that will listen about your physical challenges? I hope you did and are feeling more at peace.
just thinking of all the wonderful people I have had the privilege to communicate with.
God Bless Rox 🙂

roxie43

Posted by @roxie43, Feb 29, 2012

I read a post on another discussion about ECT and headaches but this is common. As with treatment for anything there are pros n cons. If you can tolerate at least 8-10 sessions you just might be pleasantly surprised when your mood has improved. I know its not for all but it is a ray of hope for many.

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roxie43

Posted by @roxie43, Mar 4, 2012

Happy for Lisa who reports continuing her ECT sessions despite uncomfortable but temporary side effects
you'll see how miraculously this form of therapy is.
God bless & best of luck ..Lisa
Rox

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roxie43

Posted by @roxie43, Mar 12, 2012

Getting ECT does not mean one's career is over or that somehow one is no longer capable of doing the work their passionate about.
I'm the same person .....I am more serious and focused but I don't think this is a bad thing. My headaches are mostly a thing of the past..thank God and my memory is good in fact maybe too good.
I had unilateral but who knows what the outcome may have been had I had bilateral ECT.
GRATEFUL

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piglit

Posted by @piglit, Mar 12, 2012

Hi Rox. There is certainly no reason why your career should be over. Everyone, everywhere has treatment for one thing or another. ECT is working so well for you and has made you feel so much better and as you know will contine to do so. The medication that i'm on helps me to stay well. Keep positive my friend. God Bless Piglit

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roxie43

Posted by @roxie43, Mar 14, 2012

Piglit
Please move to America! You have been so good to so many people. I know my career is not over but some would like it to be.
I don't get it....stigma?
The one's that are not getting help for their issues or are ......but they are not in compliance are running institutions, the gov't, agencies etc.
I think that in a way I've been given another career because I think stories need to be heard at the legislative and policy levels.. whatever the lord wants
Big hug Piglit....you're wonderful

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piglit

Posted by @piglit, Mar 14, 2012

Hi Roxie, Thanks so much for your kind words once again. You will return to work soon, and I know that things will work out for you. The time you have had away has given you the time to bring the message out here as to how important it is that we should not be judged. Believe me this has and will make a difference to the policies that are in place. If we could all speak out and have the courage and strength that you have shown and continue to do so everyday, what a difference this would make to our world. I am a great believer in following your heart, do what your heart tells you and very rarely I have found this to be wrong. Faith and ongoing believe gives us the daily stength that we all need. By the way I wish you could come to Australia, you make such a difference to people with your wonderul kind caring and understanding words, Know matter how down you feel you always have time for me and everyone else who needs you, even if it's just to listen. Big hug back...Your wonderful too

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roxie43

Posted by @roxie43, Mar 14, 2012

Thank you. Australia how many hours would that take? It must be beautiful because the people are.
You're great Piglit. Who knows what I'll do. Whatever god wants. He may just want me to sit back and relax and allow him to guide me to ultimate peace and fruition ...

piglit

Posted by @piglit, Mar 14, 2012

Maybe God will. I think it would take about a day's travelling. Hope he has this in mind for you. That would be great. Maybe your peace and frution may lead you to the land downunder one day. Talk soon

roxie43

Posted by @roxie43, Mar 15, 2012

That would be amazing

roxie43

Posted by @roxie43, Mar 17, 2012

Has anyone heard from Lisa - I've been thinking of her, wondering how the ECT sessions are going.
I'm praying the headaches have become less intense...
Be well,

piglit

Posted by @piglit, Mar 18, 2012

I haven't heard from Lisa either Hope all went well with her Ect on monday.Always in my prayers and thoughts Piglit

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roxie43

Posted by @roxie43, Mar 18, 2012

wrong discussion

piglit

Posted by @piglit, Mar 18, 2012

Very tall for a girl, but Bianca will always look so great in her clothes. A good clothes horse is one of my Mum's favourite sayings IMy Tim 22 yrs old towers over me at about 5'11

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roxie43

Posted by @roxie43, Mar 22, 2012

Another community member willing to try ECT next week. One has to leave no stone unturned in battling for a much deserved better quality of living.
Best

leland

Posted by @leland, Mar 23, 2012

BTW, Roxie, you may have heard this by now, but UK researchers believe they have discovered how and why ECT works. The results were just published last week. If you google the LA Times and search on ECT, there's a great summary of the findings. Best

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roxie43

Posted by @roxie43, Mar 23, 2012

Ok I will read it thank

leland

Posted by @leland, Mar 23, 2012

you are most welcome. let me know what you think.

roxie43

Posted by @roxie43, Mar 23, 2012

They talked about the left side of the brain but I had unilateral ECT on the right side. I think most scientists speculate about how it works and I've heard about some of what the article mentioned before. They made it seem like a major breakthrough but I believe the current/seizure somehow restores the brains functioning to an earlier state or a better state.
It's complicated and I appreciate that they used probands to compare and contrast but it left me with more questions than answers.
more studies should be done. I'm just grateful it exists.
Are you having the tx on both sides of the brain?
Be careful. I would start with the right side ....fewer side effects and potential cognitive impairments with doing both sides
please keep us informed .....I pray you're another success story
Rox

leland

Posted by @leland, Mar 23, 2012

Bi-lateral. I've read a lot of the literature, and seems to boil down to greater effectiveness with increased risk of memory loss. It's a personal trade-off each of us has to make. I hoping for a lot of retrograde amnesia ( there's a lot I'd like to forget) and minimal antegrade amnesia. My doc only does bilateral, and it would be very complicated to go to a clinic elsewhere. Don't have much of a support system. So, I feel comfortable enough with the bilateral in any event. More studies are always a good idea. There's rarely a perfect study. Ironically, I have Ph.D. in Experimental Psychology. While I read the literature, I'm approaching this as a patient and not a researcher. In any event, I appreciate very much you prayers and support. I'll keep you informed, if I can remember to!

china

Posted by @china, Mar 25, 2012

I just reviewed another post and I'm considering ect but feel nervous. Some are misinformed because a post had that ect caused chest congestion and problems eating.
Have you heard if this. Do you know % of efficacy. Thank you

roxie43

Posted by @roxie43, Mar 25, 2012

Hi
I'm not an ECT expert so I don't know percentages sorry. I had aches the first time and then headaches that eventually subsided. Everyone is different and maybe side effects vary.
Discuss with your doc and if you're considering this treatment I wish you success in feeling better.
Rox

roxie43

Posted by @roxie43, Mar 26, 2012

So happy for Lisa...she sounds better already. We don't cause these illnesses but we empower ourselves when we try everything available to us to be in the recovery -stage .....

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china

Posted by @china, Mar 26, 2012

You share and you help others. Your day to rise above all tribulations is around the corner. Thanks

roxie43

Posted by @roxie43, Mar 27, 2012

Sharing has caused me a lot of pain but..... in this setting if sharing gives someone anyone hope its all worth it. Others share as well and have given me hope too.
Rox....thank you

piglit

Posted by @piglit, Mar 27, 2012

Hi Roxie although this has been painful for you, you have made such a difference and helped so many through your reassurance and care for others .This my friend is what makes you so special, you always put other people's needs and concerns before your own, Take care Piglit

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