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Joined: Mar 28, 2012

Eihers-Danlos syndrome

Posted by @jojo1967, Mar 28, 2012

my friend’s daughter has been diagnosed with eihers-danlos syndrome, she has the articular form and is in alot of pain….. I would like to know if there is anyone suffering from this disease and if anyone can provide me with any information on where we could get her seen by a specialist on this disease…. we live in simeri crichi, catanzaro, calabria so basically connections in europe or italy…. unfortunately my friend had taken her daughter to rome but funding was stopped for research over here….. help pls!!!


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