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Posts: 4
Joined: Aug 23, 2011

Ehlers Danlos

Posted by @pinkfloyd2388, Aug 23, 2011

I have Ehlers Danlos type 7 and a major hip issue – hip dyplasia, subluxations, dislocations, labral tear, degeration of the hip and pelvic bones. I’ve been to multiple surgeons with no answers either ‘I have no clue’ or ‘I wouldn’t touch you with a 50 foot pole’. Anyone know someone? I’m from Mass so mayo clinic is kinda far, well really far on SSI budget… I want an answer and some relief. Thanks.



Posts: 2
Joined: Oct 24, 2011
Posted by @looselinks, Oct 24, 2011

I’m EDS III. John Hopkins in Baltimore is closer and has a number of excellent doctors for EDS. I would start there and not with surgeons


Posts: 1
Joined: Jan 23, 2012
Posted by @nancy27, Jan 23, 2012

Does anyone know of a doctor for regular follow up with Ehlers Danlos patient in New York City?


Posts: 5
Joined: May 06, 2012
Posted by @tweetertot, May 12, 2012

I have the same problem only with my shoulder! All my drs tell me theyve never seen anyone like me. Good Luck

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