Eagle Syndrome (vascular involvement)

Posted by freedoms @freedoms, Dec 7, 2021

I've had migraines and headaches since I was a child (I'm now 35). 3 years ago I kept almost fainting and vomiting for 6 months. That improved and then this exploding stabbing pain started in my head on the left side.My head hurts all the time with either a migraine or this exploding pain followed by my tongue going numb, feeling faint and like "I'm going to die". I can't exercise, bend over, sleep flat or take deep breaths without my head hurting. Chiari has been ruled out, and no pathology on MRI or CT. I just had ultrasound done and the vagus nerve is supposed to measure 1.8 and mine are 1.0, and the internal jugular vein and carotid are also being compressed bilaterally. C1 is also applying pressure to those along with the styloid processes (measured 3.5 and 3.7 cm)
I just met with Dr. Hausser at Caring Medical in Florida and am starting cervical prolotherapy and then cervical curve correction. I am trying to decide if I should also get surgery, and if so internal or external? The styloids are 3.5 and 3.7 causing pressure on the internal jugular vein, carotid and degeneration of vagus nerve. I was most interested in the DaVinci robotic surgery, and would appreciate feedback of any kind regarding the stabbing pain or recommended surgeons, etc. I live in Missouri, but am open to any Dr in the United States and will travel.

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Hi @freedoms, welcome to Mayo Clinic Connect, a place where you can connect with other patients like you. You'll notice that I moved your message to this existing discussion so you can connect with other members talking about Eagle syndrome in this related discussion:
– Eagle Syndrome: https://connect.mayoclinic.org/discussion/eagles-syndrome/

You'll notice that I removed your medical records from your post. I did this because they contained personal identifying information like date of birth, full name, etc.

Should you wish to get a second opinion from experts at Mayo Clinic, you can self-refer or ask your physician to refer to a Mayo Clinic in Arizona, Florida or Minnesota. Please see the information here: http://mayocl.in/1mtmR63

Freedoms, have you been diagnosed with Eagle syndrome?

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How do you like your care by Dr. Hausser? I live in Gainesville if you ever need a place to stay, or want to get a second opinion at Mayo Clinic Jacksonville. I had a brain tumor resected there and the care was phenomenal.

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@melissadwhiley

How do you like your care by Dr. Hausser? I live in Gainesville if you ever need a place to stay, or want to get a second opinion at Mayo Clinic Jacksonville. I had a brain tumor resected there and the care was phenomenal.

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Hi Melissa, welcome. I'm tagging @freedoms to make sure they see your post.

Can you tell me a bit more about you? You mention that you were treated at Mayo Clinic, Florida for a brain tumor. What type of brain tumor? Did you meet Dr. Q by any chance?

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