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netfun2011

Dystonia - triggers that suppress symptoms of dystonia

Posted by @netfun2011 in Brain & Nervous System, Nov 8, 2012

Hello everyone,

A dear friend has generalized dystonia.
And in a conversation with her I was surprised to hear that her painful neck
muscle contractions actually subsided and even relaxed her muscles to the point she could again turn her head.

She recently came down with a common cold which i was amazed to hear that when she does catch a cold it completely relieves the tension on her neck and can actually return her head to a normal position.
She also mentioned that she finds relief believe it or not when she has to yawn.

Has anyone heard of this happening?

I am not a doctor. But, I am wondering if there is a place where these episodes are documented by those with dystonia or similar disorders? I see there is information about "triggers" that may cause or make the condition worse.

Would anyone reading this or someone who would know if there is such a web site, or blog, or any other society that follows this phenomena of dystonia symptoms being suppressed by the common cold? Or a yawn?

Thanks
Steve

dysstoniadisease

Posted by @dysstoniadisease, Nov 11, 2012

Hi,
I am a former sufferer of dystonia and want to offer you my support if you are still struggling with this awful disorder.
I have put many years of my life into helping dystonia sufferers find relief, and through my efforts was able to get a medical study done at Johns Hopkins Medical Center with the program that helped me. It is my pleasure and privilege to work full time in helping dystonia sufferers find relief and get educated on the health fundamentals that I have discovered that can make a huge difference on improving one's health.
I have been effective in helping dozens of dystonia sufferers find relief and have worked with those in over 20 countries and 47 states. Please feel free to private message me if you would like to learn more about my work and how I have been helping others. There is nothing more enjoyable than seeing those I work with find the relief and hope as I received many years ago.

shenaaz

Posted by @shenaaz, Apr 9, 2016

I HAVE BEEN SUFFERRING WITH ST FOR MANY YEARS. I HAVE GIVEN UP AS NOTHING HAS HELPED WITH THE PAIN AND ITS BECOMING REALLY EMBARRASING AND EXTREMELY PAINFUL.

dysstoniadisease

Posted by @dysstoniadisease, Apr 11, 2016

Shennaz,

Please view my web site and read the testimonials of those with ST and then
call me.
Steve

Remember - I Care,
http://www.DystoniaHealthAdvocate.com
http://www.DystoniaDisease.net
http://www.MyBlepharospasmSolution.com

colleenyoung

Posted by @colleenyoung, Apr 10, 2016

@shenaaz, you may be interested in joining the discussion thread: Chronic pain - Let's talk https://connect.mayoclinic.org/discussion/are-there-any-discussions-for-chronic-pain/

caretothepeople

Posted by @caretothepeople, Apr 11, 2016

Hi @netfun2011, The Dystonia Medical Research Foundation provides support and information on dystonia. Or the American Dystonia Society.

https://www.dystonia-foundation.org/living-with-dystonia/finding-support/finding-a-support-group

http://www.dystonia.us/

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