Dry eyes

Posted by maryy @maryy, Jun 10, 2019

I have dry eyes due to sjogren’s syndrome. Does anyone else deal with dry eyes?

@lacy2 Between the unexpected winter in Texas and tornadoes its be a terrible weather year for sure

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@bustrbrwn22

@loribmt @lacy2 please post the results of using the omega 3/6/9 – I have spent so much money on supplements that didn't work.

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@bustrbrwn22 The Omega3/6/9 supplement is interesting and might be worth pursuing. However, I’m on several post-transplant meds yet. So before I take anything it needs to be run past my transplant team pharmacist and doctor. But it’s worth checking into. I’ll be sure to post results if I do take it.

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@bustrbrwn22

@loribmt @lacy2 please post the results of using the omega 3/6/9 – I have spent so much money on supplements that didn't work.

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Hi I dont think I will be trying the omega 3/6/9 for a while though, J.

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@cherriann

My ophthalmologist told me after my last visit to use plain eye drops to add moisture for my "aging eyes" when they feel scratchy, a bit dry, etc. I asked him which type or brand, but he said any eye drop without extra additives was fine. I've been using original Systane without preservatives and haven't tried any other brands. I read what some of you are using and was just wondering if there is something that would be better that you would recommend and I could try next time I buy eye drops. I haven't had any issues with Systane and it does the job O.K, but doesn't leave my eyes feeling anything exceptionally soothed after using. I have had cataract surgery on both eyes in the past and my vision is generally good.

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@cherriann, I just opened your post and saw Systane. That is what I use and I will share my reasons. I have itchy skin and have allergies to sulfa. I only use products that have passed the dermatology guidelines for eye products without sulfa. Systane is one of them. Just an FYI really. Aging eyes are a reality. It is 91% humidity today where I live now and 12% humidity where II used to live. My eyes say thank you to me every day. Thanks so much for sharring.

May you have contentment and ease.
Chris

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@lacy2

@lioness… oh no another work related injury… i wonder how many millions of people a year get hurt on the job! thanks, but having so many issues it sounds like i am making them up….and i think i forgot a couple like ibs-d pain, etc….. no wonder a doctor doesnt want me as a new patient, but i could bring him in lots of income! Oh you had same surgery as Brian last November… 25 years ago that is amazing .. took 3 months for the wound on his leg to heal daily dressings… ah well he eatrs red meat, smokes and drinks a bit….. but is on 13 meds…. I dont know why so many!! Ah so holistic meds may be the answer. I was diagnosed with fibromyalgia by fam. dr. in 2012 but honestly it fell by the wayside when got all these other things…. wonder if I still have it or does it disappear? Well it seems I wont help myself and just want to be like a plant in a pot and be watered but doubt i will ever bloom again. You are very brave and I see help a lot of people on here….. nice of you …. June

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I have Mixed Connective Tissue Disease (genetic, diagnosed with blood work) and fibromyalgia is part of the overlap. Movement is so important to move the fluids that press against muscles and tendons, presenting referred pain. A daily walk and general stretching make a huge difference. Rest just lets you rust. Keep up with non-processed, low sugar foods, too as sensitivities lead to pain. I got images of sore joints, and no bone issues; it is all soft tissue woes. I avoid supplements for the most part, but magnesium citrate and D3 help.

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@lacy2

@lioness …thanks, he knows the price to pay; also had bowel cancer 2014. has made his decision…. never complains like me tho… the day is turning sour so got my heating pad and going to have a nap and listen to a tape… i have stacks of papers to file but just never get around to it, although worked in an office all my life…. ! feel for those in USA who lost their homes in Tornadoes….. j.

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I gave up filing; notebooks for critical investment info, deeds, medical testing
and such. Scan the interesting stuff and recurring information. I find I can now do with one file drawer.

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@marye2

I have Mixed Connective Tissue Disease (genetic, diagnosed with blood work) and fibromyalgia is part of the overlap. Movement is so important to move the fluids that press against muscles and tendons, presenting referred pain. A daily walk and general stretching make a huge difference. Rest just lets you rust. Keep up with non-processed, low sugar foods, too as sensitivities lead to pain. I got images of sore joints, and no bone issues; it is all soft tissue woes. I avoid supplements for the most part, but magnesium citrate and D3 help.

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@marye2 I've had fibromyalgia since the late 90,s Tried ever on the market finally looked into non prescriptions was in a fibro group they suggested isometric exercises and they do also just Light stretching I take magnesium malate. I haven had a flare up in awhi,awhile, but Zim sure you know how it is ,cant do anything and nothing you try helps thank good mine only last 1 day how bout you ?

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@artscaping

@cherriann, I just opened your post and saw Systane. That is what I use and I will share my reasons. I have itchy skin and have allergies to sulfa. I only use products that have passed the dermatology guidelines for eye products without sulfa. Systane is one of them. Just an FYI really. Aging eyes are a reality. It is 91% humidity today where I live now and 12% humidity where II used to live. My eyes say thank you to me every day. Thanks so much for sharring.

May you have contentment and ease.
Chris

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Thank you for your reply. I'm glad to hear that Systane has worked for you and your reasons for using it. I'm new to using eye drops and not experienced with the types or brands, so really appreciate everyone's guidance. Thank you so much!

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@marye2, et al. This has been a long and really difficult journey with these dry eyes of mine. I now, after many years of trying to find something to give me some relief….it seemed to only get worse and symptoms increased and worsened. After visitng my long-term opthomologist and more of the same, I saw the optomotrist at Mayo for glasses w/prisms for double vision assistance
Welll, I reminded her I have Sarcoid, autoimmune disease since I was 40, I'm 74 now, and it hits the eyes often as it does the lungs; I have sarcoid attacks periodically and am always aware it's there.
Funny thing…I had indications of residual sarcoid in my eyes. Missed by my doc and others…..several months ago I went through a couple of weeks when I actually thought I was losing my eyesight, going blind. It was weird, with wosening and long term blurry sight, dull and just off so nothing was clear. Then it cleared up, then back again and I went for several days with much worse sight, buring, dry, itching, light sensitivity was horrid….she prescribed a couple weks ago a steroid eye drop that is amazing. For the first time in years, I can see clearly, with few blurred times and all the other stuff is far less. Now, I live in Fl and we have everything in the world blooming now, so my allergy eyes are having tough time.

I'm tapering off the steroid drops. using Refresh Dry Eye and Systane Dry Eye as needed duriing day, have used PM jel drops and love them. Alwyas ck to be sure no additives, no preservatives, no thimerisol at all.

Also, this doc suggested warm eye patch compresses daily, and an eye mask at night with warm compresses. If you want to think you've gone to heaven, try it. Works wonders for relaxation of body, but also relaxation and pain removal of eyes. Highly recommend. Try Bruder, ordered on-line, got wipes for lids too. Good stuff.
Wishing you all well on this search. elixabeth

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My favorite nighttime ointment is Bausch & Lomb "Soothe". Systane has some Lanolin in it, which sometimes makes my eyes itch. B&L is White Petrolatum and Mineral Oil only. No Lanolin.

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@sue225 Thanks, Sue. I'll that. BTW: the Bruder was recommended by the Mayo doc. not me….blessings, elizabeth

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@marye2

I gave up filing; notebooks for critical investment info, deeds, medical testing
and such. Scan the interesting stuff and recurring information. I find I can now do with one file drawer.

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@marye2, lioness Nice to wake up to such a good suggestion… I am overwhelmed with paperwork, filing cabinet full, desk drawer, boxes etc. and mostly from old and not so old medical files but as my memory is going, can't remember where I filed things when I need them quickly…. but sooo many papers in our files now.
I saw my last doctor for about 2 years and he put my file on usb stick when ended relationship… I decided to print as there was no index.. how can doctors these days find our test results etc. looking on computer when no index and they dont know the date? They cant always do a word search if its a report from another doctor or test result as it hasnt been typed into the computer… word search doesnt work on someone else's addition….. Anyway, 500 pages!! including half printed pages, duplicated info., pages with vert little on and errors…. now multiply that by other doctors, specialist visits …. driving me crazy. I do like getting coy of my patient file tho. and here is an example;

About a month ago i got my previous OPTOMETRIST patient file and only got around to browsing through it yesterday and discovered that during the ten years I saw her for eye exams and eyeglasses, the puff test they did on my eyes for pressure each time had readings mostly 20 and often above and up to 26 and they never told me!!!!! At the end of the ten years I was having terribly dry sore red eyes and they sent me to a new OPHTHALMOLOGIST in town….and I wondered why instead of asking me about my dry eyes specifically he hurriedly did the puffer test and immediately put me on Glaucoma drops, with a repeat prescription for 20 bottles; writing on his short report 'SUSPECTED GLAUCOMA.' I only saw this report last night, 2021 and that report was 2017 and I left that optometrist later 2017 and went to another. She never, ever, mentioned my high eye pressure. Not once. NOW high eye pressure does not mean Glaucoma and low eye pressure does not mean you dont have it… but should she not have investigated? Subsequent to leaving her I went to Toronto and top glaucoma specialist and the rest is history…His optimum reading for my eyes was 14 but current Optometrist says 20 max.

. So extra paperwork or not, good idea to ask for a copy of your patient file …here in Ontario they have to give it to yu and whether they charge or no is up to provider…I have never been charged whether put on usb , emailed or printed and mailed… glad I did because I trusted her with my eyes… had I stayed with her, what would my vision be like now.. but there was just 'SOMETHING" about her that soured.,,although very pleasant but so glad I left when I did. J. (Ontario)

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