Dr's have no idea...hoping someone has ideas

Posted by shaymelt @shaymelt, Sep 17, 2018

2 weeks + very fatigued. sept 13th awoke with pain in forehead…felt like i was hit with a baseball bat. As the day went on pain moved to eye socket and top of head ONLY on left side. Discovered large lymph nodes, they are hard and fixed and very large. Pain in head is constant for that quadrant of my head. It had sharp pains that feel like a knife stabbing in one section. I went to the ER. Had CT scan. Could see the large nodes but no tumor in head etc. No infection in nose, eyes, ears. We did a spinal tap to rule out brain bleed, meningitis, etc. Fluid was clear. Sent off labs for Lyme meningitis, and also waiting on blood lyme test. (on side note I have chronic lyme that flares up 2 weeks a year, spring and fall when the season changes…this feels nothing like my lyme…no chronic muscle joint pain, no arthritis). Sent home with doxy and pain pills. Today is 4 full days of antibiotics. I was told by 2-3 days I should feel better and lumps should be smaller. I am not better….the pain is a little less severe and to touch my face is less painful but brain pain is the same when I have the sharp pains. Lymph nodes are still very large. I also have new lumps that are barely visible but I can feel them on my face near the hairline. My SIL is a dr and she said she has never seen two different zones with lymph nodes hard and large like this. I was in the alps hiking the tour du mont blanc in early august. No bugs there but could have had a tick bite. I have been laying in bed for days because of the head pain so it is debilitating. Thank you for any help you can give.

@shaymelt, this does seem both odd and concerning. I am not a medical professional and cannot offer a diagnosis, but if you don't mind me asking, did your provider do blood work? Are the lymph nodes themselves painful, or just hard to the touch? I am not

Please sign in or register to post a reply.
  Request Appointment