Any training for caregivers about MCI and how to manage?

Posted by don123 @don123, Sep 14 9:53am

Hi, I am Don. My wife has been diagnosed with MCI 2 years ago. She still asks why she can't drive. I seem to tip toe around some of the issues with family and friends since she is till denying it.
I am a bit frustrated trying to find local support and training for care givers. Maybe I am just not looking in the right places. Good to see this is available.
Thanks or all the comments and insights.

Interested in more discussions like this? Go to the Caregivers: Mild Cognitive Impairment (MCI) & Dementia Support Group.

@don123
University of Mississippi Medical Center has a 30 hour zoom program called “Caregiver’s University.” It is an excellent free program. Call a major university or hospital system in your state/area & see what support is available for caregivers.
Every state has an Alzheimer’s Association which has numerous resources also.
Use google/AI to find other places for information.
Continue to look for resources. Millions of others are struggling with these same issues.
Find a way for you to have a break! Caregiving is hard.

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Welcome @don123, I moved your question to the Caregivers: Caregivers: Mild Cognitive Impairment (MCI) & Dementia support group here https://connect.mayoclinic.org/group/caregivers-dementia/

In this group, you'll find many members who are navigating through the waters of caring for someone living with MCI. Browse or use the search on the link above to find discussions related to things you are facing or questions you may have.

About your original question regarding training. You might be interested in Mayo Clinic's HABIT program. HABIT stands for Healthy Action to Benefit Independence & Thinking™ The HABIT Program is for individuals with MCI and their loved ones to learn the best strategies for adapting, coping, and living their best lives with MCI. Here's more information and contact: https://connect.mayoclinic.org/blog/living-with-mild-cognitive-impairment-mci/tab/resource-5394/

You might also be interested in the HABIT blog articles written by the directors of the program: https://connect.mayoclinic.org/blog/living-with-mild-cognitive-impairment-mci/

There are articles about driving and having the discussion as well as telling family and friends.

Who else besides you and your wife know about her diagnosis? Who helps support you?

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@don123 My husband was diagnosed in August of last year. Since then, I've attended the local hospital in South Florida's Caregiving classes, signed up for this valuable site, tapped into Dr Natali Careblazers (her UTUBES and emails), read a few good books on Alzheimers and Dementia, (Mayo has a good book you can order) even though my husband is in the early stages of his mild cognitive impairment. He is also having lequembe infusions done so we're part of that GUIDE process at the infusion center. The key here is to sign onto this site every morning, read, every line item, as in between all the subjects you really get valuable information, that you may not need now, but later. I haven't tapped into the alzheimers.org site yet but I know many on this site have. Good luck in finding the resources you need to help your wife in this journey of caregiving. Best, Karla

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My husband and I attended the HABIT program at Mayo Clinic a number of years ago after my husband was diagnosed with MCI. Found it helpful. It has been a slow progression for my husband who is now diagnosed with dementia. Glad you have found this site for support.

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@don123
Folks have mentioned the Alzheimers Association, great place to start, just call their 800 number and they'll connect you with virtual or in-person classes.
Also, I bet your medical institution has a support group available, most do (ask your wife's doctor). Become her POA and medical POA now while she can still designate you.
Teepa Snow on YouTube has numerous videos and she has full online classes available.
Mayo also has a virtual support group for caregivers every Thursday.
Our State offers free caregiver courses through Oregon Care Partners, so hopefully your State has the equivalent.
All the best to you as you navigate.🌻

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Medicare has a new program called GUIDE which provides up to $2500 for respite care. I have not looked into this yet, but it sounds very helpful.

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Profile picture for marthamu @marthamu

Medicare has a new program called GUIDE which provides up to $2500 for respite care. I have not looked into this yet, but it sounds very helpful.

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@marthamu
If you have Medicare Advantage you do not qualify.

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