Mayo Clinic Connect
Does anyone have any information on Low Renin Hypertension?
I found this in-depth article on PubMed http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3475896/
Have you been recently diagnosed with this?
Good morning, this is the new diagnosis. I will be returning to see Dr. Schwarts, who I believe specializes it this. I was in HTN crisis for 3 weeks and went to ER 3 times they would drop the blood pressure and send me home on the 3rd visit they admitted to hosp. Local docs thought I had 60% stenosis in both kidneys. 2 days after dc from hosp blood pressure 300/208. I drove to St Marys Mayo ER. (6hrs a way) not smart but glad I did. They ruled out stenosis. Came home from Mayos with blood pressure alittle better until 2 days ago. Blood pressure jumped again and eyes started bleeding. I’m trying to do some research to figure out what would cause this.
Dawn, this sounds like it must have been frightening and frustrating, and must still be. As you mentioned in the other thread, you’ll be coming to Mayo at the end of the month. I surely hope you have someone who will drive you or at least drive with you to your appointment. Driving alone with these issues in not wise, as you said.
How are you managing your blood pressure and symptoms while you wait for the appointment?
Yes my husband will be driving this time. My Md’s from Mayo’s have been in communication with my local doctors they have me on 5 different medications trying to control the blood pressure but it has been very difficult since we were not sure the cause. We now have a theory of the low renin. Today is pretty good. Blood pressure finally down in acceptible level and no headache. One more week before I am back.
Liked by Colleen Young, Connect Director
Hi @dawn_giacabazi. How are you? We haven’t heard from you for a while and I was wondering how you’re doing and how you’re managing the holidays?
Which prompted my question on the other feed today.
Jump to this post
Sorry for just seeing this post. Has been rough but as you already know Mayo clinic has amazing doctors and staff. Several more hospitizations, ER visits and more tests than I can remember. We have some dx to manage. Dr is baffled by a few crazy issues so kinda stalled at this moment.
Healthcare is so frustrating. They have the ability to do genetic testing to better educate physicians on what medications & dosing will work best for the patient but why don’t they use in before putting patients on the drugs? It would decrease the potential side effects related to adverse events, ER visits from negative side effects such as toxic myopathy. I am on 5 different HTN drugs which makes me so sleepy and drops my blood pressure so low and to quickly I can not function. Through long roungh several months discovered I and unusally sensitive to thyazides (chronic hypokalemia) and labatelol which I take 400mg 3x daily has a very short half life in my system. We would have known this months ago by doing the tests. Still playing with meds because still having break through hypertension crisis.
Thanks for the update @dawn_giacabazi. I read your other posts as well and am glad to see you back on Connect. Sure sounds like you’ve had a frustrating time. I wish I had answers for you. It’s of little consolation, but the information you’ve been posting and questions you’ve been asking will be helpful to others who are or will be faced with a similar diagnosis.
Have you since had genetic testing or did you discover or was your sensitivity discovered through arduous trial and error?
Liked by Ali Skahan
I own a home care agency here in Illinois and even if I can help one person who has a similar situation it is worth the trials and errors I have to go through. We now offer genetic testing for medication management to all of our patients & medicare covers the testing 100%.
We did figure out some of my medication sensitivities by trial and error. I am trying to convince one of my doctors to approve the testing for myself. Fingers crossed, headed to my appt now.
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