i take gabapentin, however sometimes it seems to quit working. than I go to acupuncture for about a month to get it back under control. I am a 5 year cancer survivor and the Taxol gave me small fiber neuropathy. my hands and feet feel like bees stinging. also, no feeling of hot or cold up to my knees. I am OK with my meds during the day. Laying in bed at night is bad, and when I wake up it is extremely painful. I think my meds probably wear off during the night.
my husband has autonomic neuopathy and very painful hands. Gabapentin (2100 mg) did not work nor did Lyrica. He wears golf gloves and says it cuts the pain in half. Dr says getting the high protein down with chemo will help. He is at Mayo so we have hope. Lots of complications from his Waldenstroms but the neuropathy is what makes him miserable.
my husband has autonomic neuopathy and very painful hands. Gabapentin (2100 mg) did not work nor did Lyrica. He wears golf gloves and says it cuts the pain in half. Dr says getting the high protein down with chemo will help. He is at Mayo so we have hope. Lots of complications from his Waldenstroms but the neuropathy is what makes him miserable.
Hi @nodunk, I read your message in the Chronic Pain group and invite you to join this discussion about chemo-induced neuropathy in the Cancer group about chemo induced peripheral neuropathy. Earlier posts in this discussion thread mention several resources about treatment, including scrambler therapy. I'll also tag @audrapopp, who has had scrambler therapy at Mayo. She hasn't posted for some time, but hopefully she'll get this message and return to share her experiences.
In the meantime, you can read this story about a patient took part in the clinical trial that @smness mentions above "Breaking Away From Pain With the Help of 'The Scrambler' " http://mayocl.in/1GxsEyS
I look forward to getting to know you better @nodunk. What type of cancer and treatments have you had?
I'm on a watch and wait approach. I have not had any treatments. so I am sorry I can't help with a good answer...
I wish you the best though... God Bless...
my husband has autonomic neuopathy and very painful hands. Gabapentin (2100 mg) did not work nor did Lyrica. He wears golf gloves and says it cuts the pain in half. Dr says getting the high protein down with chemo will help. He is at Mayo so we have hope. Lots of complications from his Waldenstroms but the neuropathy is what makes him miserable.
i take gabapentin, however sometimes it seems to quit working. than I go to acupuncture for about a month to get it back under control. I am a 5 year cancer survivor and the Taxol gave me small fiber neuropathy. my hands and feet feel like bees stinging. also, no feeling of hot or cold up to my knees. I am OK with my meds during the day. Laying in bed at night is bad, and when I wake up it is extremely painful. I think my meds probably wear off during the night.
Just spent one night in hospital for 3 days of low blood pressure. (standing was 58/43 pulse 115). Has amyloidosis in the heart now. Also kidneys and nervous system. Poor guy.
Just spent one night in hospital for 3 days of low blood pressure. (standing was 58/43 pulse 115). Has amyloidosis in the heart now. Also kidneys and nervous system. Poor guy.
Hi @azjulie, I am so sorry that your husband's condition is not showing improvement. How very difficult for you both. I see that you posted that he is at Mayo. Do you have family and friends nearby? Support is important when you are facing difficulties like this. Keep in touch and let us travel down this road with you. Best wishes and prayers go with you both.
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i take gabapentin, however sometimes it seems to quit working. than I go to acupuncture for about a month to get it back under control. I am a 5 year cancer survivor and the Taxol gave me small fiber neuropathy. my hands and feet feel like bees stinging. also, no feeling of hot or cold up to my knees. I am OK with my meds during the day. Laying in bed at night is bad, and when I wake up it is extremely painful. I think my meds probably wear off during the night.
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2 Reactionsmy husband has autonomic neuopathy and very painful hands. Gabapentin (2100 mg) did not work nor did Lyrica. He wears golf gloves and says it cuts the pain in half. Dr says getting the high protein down with chemo will help. He is at Mayo so we have hope. Lots of complications from his Waldenstroms but the neuropathy is what makes him miserable.
does he sleep with gloves on?
I'm on a watch and wait approach. I have not had any treatments. so I am sorry I can't help with a good answer...
I wish you the best though... God Bless...
No but his golf gloves are wearing out so I just ordered something from Amazon
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1 ReactionI found water aerobics to be helpful with my stiffness. What about scrambler therapy?<br><br>
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1 ReactionJust spent one night in hospital for 3 days of low blood pressure. (standing was 58/43 pulse 115). Has amyloidosis in the heart now. Also kidneys and nervous system. Poor guy.
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1 ReactionJulie, im so sorry to hear this. How are you doing?
Hi @azjulie, I am so sorry that your husband's condition is not showing improvement. How very difficult for you both. I see that you posted that he is at Mayo. Do you have family and friends nearby? Support is important when you are facing difficulties like this. Keep in touch and let us travel down this road with you. Best wishes and prayers go with you both.
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3 Reactionsnot too bad. Irritable today so went bowling and got it off my mind.
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